• Public Foundations

• 136.

BARTH SYNDROME FOUNDATION INC

Barth Syndrome Foundation - saving lives through education, advances in treatments, and finding a cure for Barth syndrome.

• Professional Societies & Associations

• 137.

Suneel Research Foundation

Our mission is to spread awareness about Duchenne Muscular Dystrophy (DMD), raise funds to support treatments and find a cure for DMD.

• Diseases of Specific Organs

• 138.

National Forum of Esrd Networks Inc

We are a nonprofit organization led by volunteers representing ESRD Networks in the USA working to improve care for people with kidney disease.

• Medical Specialty Research

• 139.

Global Society of Rare Genitourinary Tumors Inc

International Society dedicated to improving the care of rare GU tumors through cutting edge science and the promotion of education.

• Professional Societies & Associations

• 140.

Sturge-Weber Foundation

Embracing our uniqueness. We may be rare, but we're also one in a million.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 141.

Rare Genes Movement

Our vision is to see every child have access to proper medical, therapeutic, and educational resourc Our purpose is to raise awareness and funds to help families of children with rare genetic disorder.

• Birth Defects, Genetic Diseases Research

• 142.

Channeling Hope Foundation

Channeling Hope Foundation A community of researchers and families driven to advance care and develop treatments for those affected by NALCNrelated disorders.

EHLERS-DANLOS SOCIETY

Advancing and accelerating research and education in Ehlers-Danlos syndromes and HSD.

• Fund Raising and/or Fund Distribution

• 144.

GLUT1 DEFICIENCY FOUNDATION INC

Building a brighter future Bringing help and hope to the Glut1 Deficiency community as we work together to improve lives through awareness education advocacy and research Shining a light on Glut1 Deficiency Glucose Transporter Protein Type 1 Deficiency Syndrome Glut1 Deficiency is a rare genetic condition that impairs brain metabolism.