• Fund Raising and/or Fund Distribution

• 154.

Amyloidosis Foundation

Supporting #amyloidosis patients and families while promoting research, education and awareness.

• Alliance/Advocacy Organizations

• 155.

CONGENITAL HYPERINSULINISM INTERNATIONAL

Improving the lives of babies, children, and adults with hyperinsulinism (HI) by supporting HI families, research, and awareness to prevent brain damage & death CHI is dedicated to improving the lives of people living with Congenital Hyperinsulinism.

Hereditary Disease Foundation

The official Twitter feed of the Hereditary Disease Foundation.

• Specifically Named Diseases

• 157.

USHER 2020 FOUNDATION INC

Bringing therapies into clinical trials for those losing vision due to Usher Syndrome and retinitis pigmentosa.

• Cancer

• 158.

GORLIN SYNDROME ALLIANCE

Empowering those with Gorlin Syndrome to live rich, full, happy lives.

• Specifically Named Diseases

• 159.

LHON Collective

LHON Collective is a global initiative dedicated to accelerating progress toward a cure for Leber Hereditary Optic Neuropathy (LHON) while improving the lives of people living with LHON.

• Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.

• 160.

Olivia's Light Inc

Olivia's Light supports children living with a rare disease.

• Fund Raising and/or Fund Distribution

• 161.

ASXL RARE RESEARCH ENDOWMENT FOUNDATION

Supporting research and education to improve the quality of life for those living with ASXL-related disorders #BohringOpitz #ShashiPena and #BainbridgeRopers We support research and education to improve the lives of families living with ASXL syndromes.

National Ataxia Foundation Incorporated

Our mission is to accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.