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Similar organisations to SHINE Syndrome Foundation Inc

Community Rebuilding
  • Birth Defects, Genetic Diseases Research

  • 172.

Center for Human Genetics Inc

TO FUNCTION AS A LOCAL AND NATIONAL CLINIC AND DIAGNOSTIC REFERENCE RESOURCE FOR BIRTH DEFECT AND GENETIC DISORDERS; TO PROVIDE TECHNOLOGY AND SERVICES TO REFERRING PHYSICIANS AND PATIENTS FOR THE BENEFIT OF ALL PERSONS SUFFERING FROM ILLNESS, DEFECTS OR DISORDERS; TO TEACH MEDICAL STUDENTS, RESIDENTS, FELLOWS AND OTHER PERSONNEL ENGAGED IN HEALTH SERVICES AND HEALTH EDUCATION; TO ADVANCE SCIENTIFIC KNOWLEDGE THROUGH RESEARCH; TO TAKE ACTIVE PART IN THE PLANNING FOR AND THE PROMOTION OF THE SPECIFIC GENETIC AND GENERAL MENTAL AND PHYSICAL HEALTH AND HUMAN NEEDS AND INTERESTS OF THE LOCAL AND NATIONAL PATIENT POPUATION AND THEIR PHYSICIANS; TO PROVIDE SERVICES RELATED TO GENETICS; TO GATHER DATA AND ANALYZE IT FOR THE PURPOSE OF SHARING IT GENERALLY WITH THE LOCAL, NATIONAL AND INTERNATIONAL MEDICAL COMMUNITIES; TO IMPROVE AND DEVELOP TESTING PROTOCOLS AND KNOWLEDGE AND TO SHARE SUCH RESULTS FREELY AND OPENLY; TO ESTABLISH, OWN, OPERATE, CONDUCT OR MAINTAIN FACILITIES FOR TEACHING.

Location

Cambridge

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 173.

Lupus Research Institute Inc

The Lupus Research Alliance is the world’s largest private funder of lupus research.

Social Rank

214246

Location

New York

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Community Rebuilding
  • Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.

  • 174.

LYMPHATIC MALFORMATION INSTITUTE

TO IDENTIFY, ORGANIZE AND FUND RESEARCH AND STUDIES TO ADVANCE THE UNDERSTANDING OF THE HUMAN LYMPHATIC SYSTEM AND ITS MALFORMATIONS LMI Our Impact Research Funding To Date 8000000 in research grants Research Publications 20 publications resulting from 45 funded projects and presentations conducted by 36 investigators Research Network 40 investigatorsover 10 countries represented Complex Lymphatic Anomaly CLA is an umbrella term encompassing four overlapping but distinct rare diseases of the lymphatic system Gorham Stout Disease GSD Generalized Lymphatic Anomaly GLA Kaposiform Lymphangiomatosis KLA and Central Conducting Lymphatic Anomaly CCLA.

Location

Bethesda

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Community Rebuilding

NEW HOPE RESEARCH FOUNDATION

The New Hope Research Foundation is a non-profit organization dedicated to: - Finding a genetic cure for GM2 gangliosidosis and other lysosomal storage diseases that affect the central nervous system, and - Providing hope to patients and their families currently facing the degenerative and debilitating aspects of these diseases.

Location

North Oaks

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Community Rebuilding

Astro Kidz, Inc.

Our mission is to empower families with the tools and knowledge to help their children to thrive and reach for the stars by providing education, social groups, and networking.

Location

Surprise

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Community Rebuilding
  • Counseling Support Groups

  • 177.

Molly Smiles Foundation Inc

Molly was born in 2018 and was the sweetest, happiest baby.

Location

Danville

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Community Rebuilding
  • Human Service Organizations

  • 178.

Mary Carmels Light

Mary Carmel039s Light About Mary Carmels Light Mary Carmels Light is a 501c3 nonprofit organization based in North Carolina dedicated to supporting individuals with low vision or onset blindness affected by Charles Bonnet Syndrome CBS.

Location

Indian Trail

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Community Rebuilding
  • Birth Defects, Genetic Diseases Research

  • 179.

Channeling Hope Foundation

Channeling Hope Foundation A community of researchers and families driven to advance care and develop treatments for those affected by NALCNrelated disorders.

Location

San Antonio

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Community Rebuilding
  • Science & Technology Research Institutes, Services N.E.C.

  • 180.

HUDSON-ALPHA INSTITUTE FOR

A nonprofit institute where scientists, educators, clinicians and entrepreneurs collaborate and apply genomics to improve the human condition around the globe.

Social Rank

15286

Location

HUNTSVILLE

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