• Alliance/Advocacy Organizations

• 163.

Amyloidosis Support Network, Inc.

Supporting #amyloidosis patients and families while promoting research, education and awareness.

THE DOWN SYNDROME ASSOCIATION OF GREATER CHARLOTTE INC

Down Syndrome Association of Greater Charlotte - Providing information and support to individuals, families, professionals, and the community.

• Fund Raising and/or Fund Distribution

• 165.

COALITION TO CURE CHD2 INC

Fighting for our kiddos, and others, with CHD2-related neurodevelopmental disorders.

• Fund Raising and/or Fund Distribution

• 166.

Curears A NJ Nonprofit Corporation

Our mission is to spread awareness, connect and provide support to affected families and fund research for the ultra-rare mtARS genes.

• Fund Raising and/or Fund Distribution

• 167.

Chloe Strong Foundation

The Chloe Strong Foundation The Chloe Strong Foundation is a 501c3 nonprofit organization that exists to improve the quality of life for those that struggle with the rare neurological disorder Rett Syndrome by providing financial assistance support and prayers.

• Birth Defects, Genetic Diseases

• 168.

The PolG Foundation

The mission of The POLG Foundation is to support and accelerate research to find effective treatments and a cure for PolG mitochondrial disorders.

• Birth Defects, Genetic Diseases

• 169.

Tatton Brown Rahman Syndrome Community Inc

The Tatton Brown Rahman Syndrome Community supports research and educates individuals with TBRS and their families, friends, and service providers.

• Birth Defects, Genetic Diseases Research

• 170.

Channeling Hope Foundation

Channeling Hope Foundation A community of researchers and families driven to advance care and develop treatments for those affected by NALCNrelated disorders.

• Nerve, Muscle, and Bone Diseases

• 171.

Cure VCP Disease Inc

Promoting a cure for diseases related to mutations of the Valosin Containing Protein gene ABOUT US FOR PATIENTS FOR RESEARCHERS FOR CLINICIANS EVENTS BLOG GIVE SHOP MORE Finding a cure is in our DNA Cure VCP Disease Inc.