• Unknown

• 136.

Usher Syndrome Society Inc

A nonprofit that uses arts, educational events, & collaboration to raise awareness for Usher syndrome The Usher Syndrome Society is a non-profit that uses the arts, educational events, and collaboration to raise awareness and funds for treatments and a cure for Usher syndrome.

Ring14 USA Outreach Inc

Ring14 Syndrome, Rare disease, Rare epilepsy, nonprofit, support, advocacy, research Ring14 USA is nonprofit 501(c)(3) that supports children and families affected by the rare syndromes of the 14th chromosome, such as Ring14 syndrome.

• Alliance/Advocacy Organizations

• 138.

PTEN Hamartoma Tumor Syndrome Foundation

PTEN is a tumor suppressor gene. When mutated at birth a patient is at higher risk for many #cancers and #autism.

• Specifically Named Diseases

• 139.

Prion Alliance Inc

Non-profit organization devoted to funding scientific research towards a treatment or cure for human prion diseases.

• Fund Raising and/or Fund Distribution

• 140.

All in for Ethan

All In For Ethan - is a 501c3 charity that was created to enhance the quality of life for children a THE PURPOSE OF THIS ORGANIZATION IS TO PROVIDE SUPPORT FOR AND ENHANCE THE QUALITY OF LIFE OF CHILDREN AND FAMILIES AFFECTED BY GIANT AXON Ethan Inspired The Start Find Out Why.

DDC CLINIC FOR SPECIAL NEEDS CHILDREN

DDC Clinic is a non-profit primary care, education, and research facility.

GP Bosse 4 Foundation Inc.

Our mission is to bring awareness, hope and healing to children affected by Systemic Juvenile Idiopathic Arthritis (SJIA) and Macrophage Activation Syndrome (MAS).

Cure Pogz Disorders Foundation Inc

The ‘Cure Pogz Disorders Foundation’ ( CPDF) Mission is to urgently improve the lives of individuals and families affected by POGZ gene disorders by funding and accelerating cutting-edge science to discover treatments integral to our Path to Cure.

A Star for Ben Foundation Inc

STAR Foundation is a 501(c)3 non-profit, is dedicated to Salla disease research, treatment, education, awareness, and family networks.