• Private Grantmaking Foundations

• 100.

Gavin R Stevens Foundation

Our mission is to raise awareness and increase funding for research, to find a treatment and cure for blindness, focusing on Leber's Congenital Amaurosis (LCA) AWARENESS OF BLINDNESS FROM LCA var ANScustomeridbce0d824930843069bb3f3f1bcfd4038 Web Ecommerce Our Sponsors carryingcolin.

THE GIORGIO FOUNDATION

The Giorgio Foundation seeks to fund the research of pediatric neurofibromatosis 1 (NF1), a devastating genetic disorder which causes uncontrolled tumor growth.

Pace Foundation

A national non-profit patient organization dedicated to improving diagnosis & treatment of persons with Pediatric Autoimmune Neurological Disorders The Pediatric Autoimmune neurologiCal rEsearch (PACE) Foundation, is a national non-profit patient organization dedicated to researching these disorders.

Kruzn for A Kure Foundation

Kruzn For A Kure Foundation is a non-profit organization funding research for an extremely rare genetic disease & fatal type of dwarfism, #SIOD.

• Heart and Circulatory System

• 104.

Adityas Heart

EDUCATE ABOUT CHD AND SUPPORT FAMILIES Supporting CHD Awareness Education Research and families.

Dlg4 Research Fund

DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation A page for people interested in learning more about DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation Mission To find specific treatment options and a cure for DLG4 patients by building a collaborative network of patients, families, clinicians and scientists that will work together to raise awareness and accelerate the understanding, diagnosis and treatment of DLG4 related synaptopathy.

• Alliance/Advocacy Organizations

• 106.

Ctx Alliance NFP

Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease.

• Patient Services�Entertainment, Recreation

• 107.

HLH Heroes Foundation Not for Profit

"NO ONE FIGHTS ALONE" The mission of HLH Heroes Foundation is to provide support to individuals and families impacted by HLH.

• Nonmonetary Support N.E.C.*

• 108.

SPOONBILL FOUNDATION

Finding a solution for PKAN Spoonbill Foundation and our sister organization Stichting Lepelaarwere founded with the goal to discover develop and deliver therapeutics for PKAN and all NBIA disorders in partnership with the NBIA community as swiftly as possible and at the lowest cost.