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Similar organisations to NOONAN SYNDROME FOUNDATION

Community Rebuilding
  • Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.

  • 82.

INTERNATIONAL CHILDRENS ANOPHTHALMIA NETWORK INC

ICAN a voluntary not for profit organization, is a group of families and professionals dedicated to lending support to individuals who want to learn more about microphthalmia and anopthalmia and associated genetic counseling.

Location

Philadelphia

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Community Rebuilding
  • Pediatrics Research

  • 83.

National Pediatric Blood Pressure Awareness Foundation

National Pediatric Blood Pressure Awareness Foundation KYKN KNOW YOUR KID'S NUMBERS.

Social Rank

1308

Location

Prairieville

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Community Rebuilding

Lennox-Gastaut Syndrome (LGS) Foundation

The LGS Foundation is dedicated to improving the lives of individuals impacted by LGS through advancing research, awareness, education, and family support.

Social Rank

89099

Location

San Diego

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Community Rebuilding
  • Specifically Named Diseases

  • 85.

Smith-Kingsmore Syndrome Foundation

Smith-Kingsmore Syndrome is a rare genetic disease.

Social Rank

239

Location

Cincinnati

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 86.

Undiagnosed Diseases Network Foundation (UDNF)

Improving access to diagnosis, research, and care for all with undiagnosed and ultra-rare conditions.

Social Rank

3469

Location

Washington

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Community Rebuilding
  • Specifically Named Diseases

  • 87.

Eds Resource Network

EDS Resource Network (EDSRN), a 501(c)(3) nonprofit of Utah, provides aid, education, and support to the Ehlers-Danlos Syndromes (EDS) patients, caregivers, and medical providers across the state.

Location

Sandy

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 88.

Ava Grace Foundation

For UPD14 Home Ava Gracex27s Story Donate Families Caregivers Medical Professionals Upcoming Events More The Ava Grace Foundation Supporting Families Advancing Research of UPD14Uniparental Disomy of the 14th Chromosome Families Caregivers Information about UPD14 common signs and symptoms getting diagnosed and treatments.

Location

Athens

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Community Rebuilding
  • Birth Defects, Genetic Diseases Research

  • 89.

THE NATIONAL FRAGILE X FOUNDATION

News and information from the National Fragile X Foundation about Fragile X syndrome, FXTAS, FXPOI and the other Fragile X-associated disorders Since 1984, the National Fragile X Foundation has been providing knowledge, resources and tools to families living with Fragile X and the professionals support them throughout their lifespan.

Social Rank

19697

Location

WASHINGTON

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 90.

BENEFIT OTHERS FOUNDATION

Helping to overcome hardships and providing opportunities for children and their families Who We Are Benefit Others Foundation is a nonprofit 501c3 organization committed to enriching the lives of others.

Location

BRANFORD

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