• Birth Defects, Genetic Diseases

• 1.

HETEROTAXY CONNECTION

A nonprofit organization dedicated to the support, education, and empowerment of the heterotaxy community.

Rare and Undiagnosed Network Inc

RUN for those affected with rare/undiagnosed conditions: Raise awareness.

• Birth Defects, Genetic Diseases

• 3.

International Rett Syndrome Association, Inc.

We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder.

• Birth Defects, Genetic Diseases Research

• 4.

International FOXP1 Foundation

Our mission is to build a global community that empowers and supports families and individuals with FOXP1 syndrome by sharing knowledge, inspiring hope, supporting research, and raising awareness.

• Alliance/Advocacy Organizations

• 5.

Nrxn1 Network

Our mission is to build a collaborative network of families, clinicians, and scientists in order to support individuals affected by NRXN1 disorder.

• Health - General & Rehabilitative N.E.C.

• 6.

4P-Support Group

Our mission is to serve our membership by providing information, education and support; uniting families, researchers, and professionals; and promoting awareness and understanding of 4p- syndrome, with Wolf-Hirschhorn Syndrome as the main condition, and the related 4th chromosome abnormalities.

• Specifically Named Diseases

• 7.

CTNNB1 Connect and Cure Inc

Connecting families, raising awareness, finding treatments and a cure for CTNNB1 Syndrome 🧬💛💙 https://t.

International Rett Syndrome Foundation

We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder.

• International Relief

• 9.

FRIENDS OF IPWSO

Friends of IPWSO raises money to improve the lives of children and adults who are born with Prader-Willi Syndrome.