• Alliance/Advocacy Organizations

• 19.

Autoimmune Information Network Inc

We help patients with autoimmune diseases by running monthly support groups, online support groups, help with patient assistance programs, find financial resources and anything else a patient and their families could need.

• Human Services - Multipurpose & Other N.E.C.

• 20.

Pull-thru Network Inc

A non-profit organization providing mutual support to the families of those born with an anorectal malformation, colon disease, and associated defects.

• Alliance/Advocacy Organizations

• 21.

Cystinosis Research Network, Inc.

Cystinosis Research Network is dedicated to supporting research, providing family outreach & educating the public & medical communities about #cystinosis The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating cystinosis research.

• Alliance/Advocacy Organizations

• 22.

Hht Foundation International Inc

Cure HHT is the only organization in the US advocating for research, education and a cure for Hereditary Hemorrhagic Telangiectasia, Osler-Weber-Rendu Syndrome The official Facebook page for Cure HHT, the world's leading organization working to raise awareness The mission of the HHT Foundation International is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

• Fund Raising and/or Fund Distribution

• 23.

RARE GENOMICS INSTITUTE INC

RGI is a non-profit organization that provides research to families in need of diagnosis & treatment for rare genetic diseases.

Cloves Syndrome Community

Support, Research & Education to improve the quality of life for ppl with CLOVES.

• Alliance/Advocacy Organizations

• 25.

Trpm3 Foundation

Patient advocacy and support for those affected by #TRPM3 #ionchannel related disorders.

• Medical Specialty Research

• 26.

Curemapk8Ip3 Foundation

Family support network for patients and their families affected by a gene mutation in MAPK8IP3 Page for individuals and families with gene variant MAPK8IP3 Improve the lives of patients and families affected by a MAPK8IP3 gene mutation by performing the following activities: raising community awareness of MAPK8IP3-Related Neurodevelopmental Disorder; facilitating research of MAPK8IP3-Related Neurodevelopmental and related Disorders; collecting and disseminating information and resources relating to MAPK8IP3-Related Neurodevelopmental and related Disorders; supporting those affected by MAPK8IP3-Related Neurodevelopmental and related Disorders; and any other charitable educational or scientific activities that are in furtherance of the Corporation's purposes.

• Specifically Named Diseases

• 27.

Eds Resource Network

EDS Resource Network (EDSRN), a 501(c)(3) nonprofit of Utah, provides aid, education, and support to the Ehlers-Danlos Syndromes (EDS) patients, caregivers, and medical providers across the state.