• Arthritis

• 37.

INTERNATIONAL SCLERODERMA NETWORK

The International Scleroderma Network, home of SCLERO.

DOWN SYNDROME DIAGNOSIS NETWORK (DSDN)

Down Syndrome Diagnosis Network (DSDN) Learn more & join here: http://www.

CURE MULTIPLE SCLEROSIS FOUNDATION OF NEW YORK INC

We support complimentary and holistic treatments for Multiple Sclerosis To raise awareness and much needed funds in helping support research in finding safe and healthy treatments and ultimately a cure to MS.

Kcnq2 Cure Alliance Inc

Our promise is to educate and to advance research leading to treatments or a cure for patients living with the genetic disorder KCNQ2 Raising awareness, educating, and advancing research for KCNQ2 Developmental and Epileptic Encephalopathy.

• Fund Raising and/or Fund Distribution

• 41.

Tbc1D24 Foundation

Tbc1d24 foundation is a research organization and connecting site for caregivers, families, and those diagnosed with Tbc1d24 mutations.

Cure Pogz Disorders Foundation Inc

The ‘Cure Pogz Disorders Foundation’ ( CPDF) Mission is to urgently improve the lives of individuals and families affected by POGZ gene disorders by funding and accelerating cutting-edge science to discover treatments integral to our Path to Cure.

• Fund Raising and/or Fund Distribution

• 43.

The Telomere Project

The Telomere Project is dedicated to funding lifesaving efforts for those affected by telomere syndromes, in particular, idiopathic pulmonary fibrosis IPF The Telomere Project is dedicated to funding lifesaving efforts for those affected by telomere syndromes TS in particular those which result in shortened telomeres or low telomere promotion.

Alagille Syndrome Alliance

The Alagille Syndrome Alliance is an international support and advocacy network for people with ALGS and their families.

• Nerve, Muscle, and Bone Diseases

• 45.

Peripheral Neuropathy Support Network

No One Is Alone. Join Connect Share.