Similar organisations to Dion Foundation for Children with Rare Diseases Inc
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Fund Raising and/or Fund Distribution
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1.
Cure Lgmd 2T Inc
🧬 Genetic Testing Access 🗒️ Patient Registry 🔬 Advancing and Funding Research 📚 Educating & Raising Awareness Help Us Cure LGMD 2T Limb Girdle Muscular Dystrophy Our mission is dedicated to raising awareness for Limb Girdle Muscular Dystrophy 2T and providing critical funding for research into effective treatments.
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Nerve, Muscle, and Bone Diseases
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2.
Kurts Fund
The Kurt+Peter Foundation raises funds for research for a treatment and cure for limb-girdle muscular dystrophy, type 2c or "LGMD2C.
Menlo Park
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Birth Defects, Genetic Diseases Research
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3.
Ataxia Telangiectasia Children's Project, Inc.
The A-TCP organizes & supports innovative research to optimize disease management strategies, develop new treatments and find a cure for ataxia-telangiectasia.
6938
Coconut Creek
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Nerve, Muscle, and Bone Research
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4.
Lgmd2L Foundation
We’re a nonprofit searching for a cure for LGMD2L, a rare disease that causes muscle weakness and atrophy, pain, and eventually leads to many sufferers being unable to walk.
409
Park Ridge
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Research Institutes and/or Public Policy Analysis
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5.
Riaan Research Initiative Inc
501(c)(3) non-profit organization hunting for a cure for rare and life-limiting genetic diseases that hurt children, starting with Cockayne syndrome.
684
Oakland Gardens
Dlg4 Research Fund
DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation A page for people interested in learning more about DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation Mission To find specific treatment options and a cure for DLG4 patients by building a collaborative network of patients, families, clinicians and scientists that will work together to raise awareness and accelerate the understanding, diagnosis and treatment of DLG4 related synaptopathy.
637
Allen
CureLGMD2i Foundation
The CureLGMD2i Foundation strives to raise awareness and to support scientific research that is geared directly toward finding a treatment or cure for Limb Girdle Muscular Dystrophy type 2i (LGMD2i).
LANCASTER
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Alliance/Advocacy Organizations
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8.
LGMD AWARENESS FOUNDATION INC
Advocating - Educating - Celebrating limb-girdle muscular dystrophy (LGMD) MeetGirdie LGMD Awareness Day Toolkit Join the LGMD Awareness Foundation in our mission to shine a global spotlight on limbgirdle muscular dystrophy LGMD and champion the cause for improved access to diagnosis care and treatment for those living with this condition.
2431
TWIN LAKES
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Other Medical Research N.E.C.
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9.
FRIEDREICH'S ATAXIA RESEARCH ALLIANCE
Together, we will cure Friedreich's ataxia.
14247
SPRINGFIELD





