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Similar organisations to Dion Foundation for Children with Rare Diseases Inc

Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 1.

Cure Lgmd 2T Inc

🧬 Genetic Testing Access 🗒️ Patient Registry 🔬 Advancing and Funding Research 📚 Educating & Raising Awareness Help Us Cure LGMD 2T Limb Girdle Muscular Dystrophy Our mission is dedicated to raising awareness for Limb Girdle Muscular Dystrophy 2T and providing critical funding for research into effective treatments.

Social Rank

16

Location

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Community Rebuilding
  • Nerve, Muscle, and Bone Diseases

  • 2.

Kurts Fund

The Kurt+Peter Foundation raises funds for research for a treatment and cure for limb-girdle muscular dystrophy, type 2c or "LGMD2C.

Location

Menlo Park

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Community Rebuilding
  • Birth Defects, Genetic Diseases Research

  • 3.

Ataxia Telangiectasia Children's Project, Inc.

The A-TCP organizes & supports innovative research to optimize disease management strategies, develop new treatments and find a cure for ataxia-telangiectasia.

Social Rank

6938

Location

Coconut Creek

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Community Rebuilding
  • Nerve, Muscle, and Bone Research

  • 4.

Lgmd2L Foundation

We’re a nonprofit searching for a cure for LGMD2L, a rare disease that causes muscle weakness and atrophy, pain, and eventually leads to many sufferers being unable to walk.

Social Rank

409

Location

Park Ridge

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Community Rebuilding
  • Research Institutes and/or Public Policy Analysis

  • 5.

Riaan Research Initiative Inc

501(c)(3) non-profit organization hunting for a cure for rare and life-limiting genetic diseases that hurt children, starting with Cockayne syndrome.

Social Rank

684

Location

Oakland Gardens

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Community Rebuilding

Dlg4 Research Fund

DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation A page for people interested in learning more about DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation Mission To find specific treatment options and a cure for DLG4 patients by building a collaborative network of patients, families, clinicians and scientists that will work together to raise awareness and accelerate the understanding, diagnosis and treatment of DLG4 related synaptopathy.

Social Rank

637

Location

Allen

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Community Rebuilding

CureLGMD2i Foundation

The CureLGMD2i Foundation strives to raise awareness and to support scientific research that is geared directly toward finding a treatment or cure for Limb Girdle Muscular Dystrophy type 2i (LGMD2i).

Location

LANCASTER

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 8.

LGMD AWARENESS FOUNDATION INC

Advocating - Educating - Celebrating limb-girdle muscular dystrophy (LGMD) MeetGirdie LGMD Awareness Day Toolkit Join the LGMD Awareness Foundation in our mission to shine a global spotlight on limbgirdle muscular dystrophy LGMD and champion the cause for improved access to diagnosis care and treatment for those living with this condition.

Social Rank

2431

Location

TWIN LAKES

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Community Rebuilding
  • Other Medical Research N.E.C.

  • 9.

FRIEDREICH'S ATAXIA RESEARCH ALLIANCE

Together, we will cure Friedreich's ataxia.

Social Rank

14247

Location

SPRINGFIELD

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