• Epilepsy

• 37.

Where Theres A Will Theres A Cure

We are going to cure X-Linked Myotubular Myopathy.

• Research Institutes and/or Public Policy Analysis

• 38.

Forgotten Diseases Research Foundation

THE FORGOTTEN DISEASES RESEARCH FOUNDATION IS A NONPROFIT DEDICATED TO VERY RARE DISORDERS.

• Fund Raising and/or Fund Distribution

• 39.

Curears A NJ Nonprofit Corporation

Our mission is to spread awareness, connect and provide support to affected families and fund research for the ultra-rare mtARS genes.

• Fund Raising and/or Fund Distribution

• 40.

The Children's Rare Disorders Fund

Dedicated to curing rare genetic disorders Founded in July 2022 by parents of a toddler affected by FOXG1, The CRD Fund focuses on under served communities in the rare disorder space.

• Birth Defects, Genetic Diseases

• 41.

Iqsec2 Research and Advocacyfoundation

Welcome to IQSEC2. ORG Research and Advocacy Foundation MISSION STATEMENT Vision In the next 10 years we will dramatically improve the quality of life for those affected by IQSEC2 mutations through 1 the establishment and dissemination of standard treatment and therapy protocols to medical practitioners and therapists worldwide 2 support of research and development of new and innovative treatments for IQSEC2 related diseases and 3 uplift support all loved ones of those affected by IQSEC2 through an advocate community and its allies.

CureSHANK

CureSHANK's mission is to accelerate the development of treatments and cures for Phelan-McDermid Syndrome and other SHANK-related disorders.

• Specific Organ Research

• 43.

L-CMD RESEARCH FOUNDATION

L-CMD Research Foundation's purpose is to translate available scientific technologies into treatment Today we are one step closer to a tomorrow without LMNArelated congenital muscular dystrophy.

FIGHTING DUCHENNE FOUNDATION

Duchenne Muscular Dystrophy is a horrible disease that is fatal 100 % of the time with no current cure.

EHLERS-DANLOS SOCIETY

Advancing and accelerating research and education in Ehlers-Danlos syndromes and HSD.