• Diseases, Disorders, Medical Disciplines N.E.C.

• 1.

U R Our Hope

Non-profit serving individuals with undiagnosed & rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment Assisting those with undiagnosed or rare disorders at any age and any stage.

• Remedial Reading, Reading Encouragement

• 2.

Firefly Fund

A nonprofit that provides crucial support for research and education necessary to accelerate cures for rare genetic diseases that affect children.

Coming Together For A Cure, Inc

A 501c3 nonprofit dedicated to advancing stem cell therapy for Duchenne MD and other rare diseases.

• Birth Defects, Genetic Diseases Research

• 4.

Alstrom Angels Corp

www. alstromangels. org Dedicated to raising funds for Alstrom Syndrome genetic and medical research, increasing awareness of the rare disease among the general public and medical communities, and improving family support for those affected by the Syndrome.

• Specifically Named Diseases

• 5.

Andrews Firefly Fund

A nonprofit that provides crucial support for research and education necessary to accelerate cures for rare genetic diseases that affect children.

• Fund Raising and/or Fund Distribution

• 6.

The Children's Rare Disorders Fund

Dedicated to curing rare genetic disorders Founded in July 2022 by parents of a toddler affected by FOXG1, The CRD Fund focuses on under served communities in the rare disorder space.

Lightning and Love Foundation

Founder of Lightning and Love foundation and mom to two ultra-rare THAP12 genetic epilepsy disease daughters searching for a cure.

• Fund Raising and/or Fund Distribution

• 8.

HOPE FOR HARVEY FOUNDATION INC

Register for the 4th Annual Hope for Harvey Golf Tournament on 882025.

• Fund Raising and/or Fund Distribution

• 9.

TO CURE A ROSE FOUNDATION

At To Cure A Rose Foundation, we’re on a mission to make genetic treatments faster, more affordable, and within reach—so that the next child born with a rare disease can receive a customized drug within days of diagnosis.