• Fund Raising and/or Fund Distribution

• 46.

Taylors Tale

Taylor's Tale is a public charity dedicated to the fight against CLN1 disease and other rare diseases.

BARROW NEUROLOGICAL FOUNDATION

Our mission is to be the catalyst of our donors’ passion for transformation by providing the resources for Barrow Neurological Institute to achieve its mission.

• Fund Raising and/or Fund Distribution

• 48.

Gardaccess Inc

Accelerating access to quality healthcare Addressing Unmet Needs in Rare Diseases Access to lifesaving medicine programs in low and middleincome countries LMIC presents a significant unmet need for patients living with rare disorders.

• Fund Raising and/or Fund Distribution

• 49.

Arid1B Research Foundation

Accelerating the development of disease-modifying treatments for #ARID1B-RD (haploinsufficiency) - the most frequently mutated gene in de novo NDDs (ASD, ID).

• Alliance/Advocacy Organizations

• 50.

KIF1A.ORG

We connect families affected by KIF1A and relentlessly work to accelerate research.

• Birth Defects, Genetic Diseases

• 51.

CACNA1A Foundation

Nonprofit dedicated to a brighter future for those with CACNA1A variants.

• Fund Raising and/or Fund Distribution

• 52.

Family Strong Foundation Inc

FAMILY STRONG FOUNDATON 550000Raised for Researchsince 2014 Raising awareness while supporting the reasearch for a CURE for ALS.

• Fund Raising and/or Fund Distribution

• 53.

WARDS FOUNDATION

Save the Date for A Rare Affair Saturday February 10 2024 at Charlotte Country Club A unique wine experience with access to rare varietals vineyards and vintages benefiting families facing rare diseases.

• Specifically Named Diseases Research

• 54.

Dion Foundation for Children with Rare Diseases Inc

Support research. Find a cure. Help children and families fight rare diseases.