• Private Grantmaking Foundations

• 91.

Gavin R Stevens Foundation

Our mission is to raise awareness and increase funding for research, to find a treatment and cure for blindness, focusing on Leber's Congenital Amaurosis (LCA) AWARENESS OF BLINDNESS FROM LCA var ANScustomeridbce0d824930843069bb3f3f1bcfd4038 Web Ecommerce Our Sponsors carryingcolin.

Hope4Harper

Hope4Harper is a grassroots organization designed to provide hope to those living with CDKL5 deficiency and other seizure disorders by fostering awareness and supporting research.

• Birth Defects, Genetic Diseases

• 93.

International Rett Syndrome Association, Inc.

We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder.

Little Hercules Foundation

We serve the rare disease community through access advocacy and good policy.

• Fund Raising and/or Fund Distribution

• 95.

The Stiff Person Syndrome Research Foundation

Finding a cure for Stiff Person Syndrome through RArE: Research, Awareness, and Education.

• Human Service Organizations

• 96.

Hop On A Cure Foundation Inc

Hop On A Cure is committed to supporting research to prevent, reverse and #CureALS Hop On A Cure's mission is to support research to prevent, reverse, and cure ALS while raising awareness, building a compassionate community, and unleashing the healing power of hope.

• Birth Defects, Genetic Diseases Research

• 97.

Rory Belle Foundation

We are a family run foundation established to raise funding and awareness for a gene therapy cure for the NARS1 disease.

Rarekc Foundation

Our mission is to drive innovation in the diagnosis, care and treatment of rare diseases by connecting and inspiring our community.

• Specifically Named Diseases Research

• 99.

SLC6A1 CONNECT

People Magazine Exclusive Milestones for Maxwell What if your child was diagnosed with a disease so rare it didnt have a name.