BEYOND BATTEN DISEASE FOUNDATION

Mission: eradicate Batten disease. Batten disease is a fatal neurodegenerative disorder that takes away childhood, and then takes away.

• Nerve, Muscle, and Bone Diseases

• 146.

Dmd Help

Contact 1 888 3081808 email infodmdhelp.

• Alliance/Advocacy Organizations

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Haystack Project Inc

We are committed to the Ultra Rare Disease Community.

• Specifically Named Diseases Research

• 148.

Countdown for A Cure Inc

Countdown For A Cure is a collaborative force dedicated to accelerating mitochondrial research to advance the field of mitochondrial medicine, focusing on conditions and diseases stemming from cellular energy dysfunction.

• Alliance/Advocacy Organizations

• 149.

Rare Sisters Batten Foundation Inc

A rare, fatal, neurological disease that affects sisters Cecilia and Lilly.

• Alliance/Advocacy Organizations

• 150.

Charlottes Hope Foundation Inc

The Parent Empowerment Network exists to support, encourage and educate parents and caregivers of children with medical complexities.

Cure Pogz Disorders Foundation Inc

The ‘Cure Pogz Disorders Foundation’ ( CPDF) Mission is to urgently improve the lives of individuals and families affected by POGZ gene disorders by funding and accelerating cutting-edge science to discover treatments integral to our Path to Cure.

SEATTLE CHILDREN'S HOSPITAL

The I Can And I Will Guild was created as a non-profit in December 2019 to support Seattle Children's Hospital and raise money for Uncompensated Care.

BEYOND THE DIAGNOSIS

Beyond the Diagnosis unites art and science to bridge the knowledge gap in healthcare, promote inclusivity, and raise awareness for children living with life-altering diseases.