• Birth Defects, Genetic Diseases Research

• 55.

The Evanosky Foundation

The Evanosky Foundation exists for the purpose of generating funds to support two main objectives.

CURE 4 THE KIDS FOUNDATION

Treating & preventing childhood catastrophic diseases, cancer & blood disorders.

• Birth Defects, Genetic Diseases

• 57.

Curefa Foundation Inc

CUREFA FOUNDATION FUNDS CAPITAL INTENSIVE PROJECTS GATED WITH SUCCESS MILESTONES, LEVERAGING NOVEL TOOLS OF SCIENTIFIC RESEARCH FOR THE TREATMENT AND CURE OF FRIEDREICH'S ATAXIA.

• Management & Technical Assistance

• 58.

Pathways Corp

To elevate the patient's voice to increase access to care and eliminate bias by bringing stakeholders together Home Our Team Events Initiatives Partners Media Kit Contact More Its Time to Listen to the Rare Disease Community.

• Fund Raising and/or Fund Distribution

• 59.

Childrens Rare Disease Organization Inc

Many children are living with a rare disease.

Mila's Miracle Foundation Inc

Mila fought hard against Batten disease, a rare fatal condition with no cure.

Hunters CMT4B3 Research Foundation Inc

Pioneering cutting edge scientific research to develop treatments for CMT4B3 patients and children with rare neuromuscular diseases.

• Alliance/Advocacy Organizations

• 62.

Charlotte and Gwenyth Gray Foundation

Sisters, Charlotte & Gwenyth, were diagnosed w/ Batten Disease, a rare & fatal brain disease.

• Specifically Named Diseases Research

• 63.

Dion Foundation for Children with Rare Diseases Inc

Support research. Find a cure. Help children and families fight rare diseases.