• Remedial Reading, Reading Encouragement

• 64.

Firefly Fund

A nonprofit that provides crucial support for research and education necessary to accelerate cures for rare genetic diseases that affect children.

• Private Operating Foundations

• 65.

DEATER FOUNDATION INC

Deater Foundation Inc. works to provide funding and support for medical research on HSAN1, a hereditary sensory neuropathy, with the goal of advancing understanding, awareness and helping to bring about a potential treatment/cure for this disease.

• Birth Defects, Genetic Diseases

• 66.

International Rett Syndrome Association, Inc.

We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder.

NEW HOPE RESEARCH FOUNDATION

The New Hope Research Foundation is a non-profit organization dedicated to: - Finding a genetic cure for GM2 gangliosidosis and other lysosomal storage diseases that affect the central nervous system, and - Providing hope to patients and their families currently facing the degenerative and debilitating aspects of these diseases.

• Fund Raising and/or Fund Distribution

• 68.

Tbc1D24 Foundation

Tbc1d24 foundation is a research organization and connecting site for caregivers, families, and those diagnosed with Tbc1d24 mutations.

• Birth Defects, Genetic Diseases

• 69.

Louies Huwe

Looking for information on HUWE1 gene variants.

• Fund Raising and/or Fund Distribution

• 70.

The Children's Rare Disorders Fund

Dedicated to curing rare genetic disorders Founded in July 2022 by parents of a toddler affected by FOXG1, The CRD Fund focuses on under served communities in the rare disorder space.

HISTIOCYTOSIS ASSOCIATION INC

Dedicated to raising awareness about histiocytic disorders, providing educational and emotional support, and funding research.

• Specifically Named Diseases

• 72.

ALL THINGS KABUKI INC

All Things Kabuki is a registered 501(c)3 non-profit dedicated to supporting families affected by Kabuki syndrome.