Spastic Paraplegia Foundation, Inc.

Hereditary Spastic Paraplegia #hsp & Primary Lateral Sclerosis #pls together we are #HSPandPLS The Spastic Paraplegia Foundation is committed to promoting research to find cures for Hereditary Spastic Paraplegia and Primary Lateral Sclerosis, to educating people and their families affected by these conditions to help them live full and productive lives and to creating opportunities for mutual support and sharing.

Race for Adam Foundation

Adam Recke was diagnosed in 2005 with an extremely rare, degenerative terminal disease, Type-C Niemann-Pick Syndrome.

• Birth Defects, Genetic Diseases Research

• 48.

Cure CMD

Cure CMD’s mission is to advance research toward treatments for congenital muscular dystrophies and empower those living with CMD.

• Alliance/Advocacy Organizations

• 49.

PTEN Hamartoma Tumor Syndrome Foundation

PTEN is a tumor suppressor gene. When mutated at birth a patient is at higher risk for many #cancers and #autism.

• Other Mental Health, Crisis Intervention N.E.C.

• 50.

Schell Therapy

Schell Therapy, Inc. was formed in 2019 to provide individual, couple and family therapy for clients with mental health disabilities.

• Fund Raising and/or Fund Distribution

• 51.

FORE BATTEN FOUNDATION

Batten disease is a rare, inherited disorder of the nervous system that usually begins in childhood.

International Rett Syndrome Foundation

We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder.

• Birth Defects, Genetic Diseases

• 53.

NF2 Biosolutions

NF2 patient led nonprofit dedicated to funding research, and supporting those affected by NF2-related schwannomatosis NF2 BioSolutions, is a 100% volunteer-run, nonprofit organization that funds research for NF2 Accelerating Novel Therapy Research for Neurofibromatosis Type 2 Gene Therapy is changing the world of genetic diseases.

• Fund Raising and/or Fund Distribution

• 54.

BFLS Incorporated

Mom on a mission to raise awareness and funds for research for the rare genetic disorder Börjeson-Forssman-Lehman Syndrome or BFLS� Born Fierce.