• Specifically Named Diseases Research

• 118.

Coalition Duchenne

We're on a mission to do everything FUN to raise global awareness for Duchenne muscular dystrophy, to fund research for a cure.

• Birth Defects, Genetic Diseases

• 119.

Cystic Fibrosis Foundation

Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.

• Specifically Named Diseases

• 120.

Pituitary World News

Pituitary World News was established in 2014 to increase awareness of pituitary disease so more people are diagnosed properly and early.

Rare Trait Hope Fund

Rare trait Hope Fund facilitates research and provides funding for the development of treatments for a rare disease called Aspartylglucosaminuria (AGU) in hopes to save lives of AGU kids and adults.

• Brain Disorders

• 122.

NOAHS HOPE HOPE 4 BRIDGET FOUNDATION

The mission of the Noah's Hope – Hope4Bridget Foundation is to raise funds in support of scientific research, and inform the community about Batten Disease.

• Birth Defects, Genetic Diseases

• 123.

SHINE Syndrome Foundation Inc

DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation A page for people interested in learning more about DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation Our mission is to improve the quality of life for children and families impacted by DLG4 SHINE through supporting collaborative research among international medical professionals, nurturing a family community, and raising worldwide awareness.

• Fund Raising and/or Fund Distribution

• 124.

Chloe Strong Foundation

The Chloe Strong Foundation The Chloe Strong Foundation is a 501c3 nonprofit organization that exists to improve the quality of life for those that struggle with the rare neurological disorder Rett Syndrome by providing financial assistance support and prayers.

• Alliance/Advocacy Organizations

• 125.

Charlotte and Gwenyth Gray Foundation

Sisters, Charlotte & Gwenyth, were diagnosed w/ Batten Disease, a rare & fatal brain disease.

Hwangstrong Foundation

Our son, Jakob Hwang, used to say, "Having cancer isn't hard.