• Nerve, Muscle, and Bone Diseases

• 145.

CureDuchenne

We are committed to improving the lives of those affected by Duchenne through accelerating research, improving care and empowering the community.

• Birth Defects, Genetic Diseases

• 146.

Hoppys Hope To End Huntingtons Disease

RAISE AWARENESS AND PROVIDE FINANCIAL SUPPORT TO ORGANIZATIONS DEDICATED TO FINDING TREATMENTS, AND ULTIMATELY, A CURE FOR HUNTINGTON'S DISEASE.

• Nerve, Muscle, and Bone Research

• 147.

Lgmd2L Foundation

We’re a nonprofit searching for a cure for LGMD2L, a rare disease that causes muscle weakness and atrophy, pain, and eventually leads to many sufferers being unable to walk.

• Private Grantmaking Foundations

• 148.

Wallace Beeson Foundation Inc

A 501(c) founded in 2017 to raise money for research in rare Neurogastrointestinal & Motility Disease Home About Research Our Team More JOIN OUR FIGHT TOMAKE RARE KNOWN Funding Research for Rare Neurogastrointestinal Motility disorders YOUR DONATION FUNDS A DESPERATE NEED IN RESEARCH HOW WE STARTED From being a healthy 15yearold competitive swimmer to having to fight for herlife almost overnight Wallacesaw first hand the effect a rare condition has on someone.

• Specifically Named Diseases

• 149.

CURE ADSSL1

501(c)(3) non-profit patient advocacy group with the mission to find treatment for ADSSL1 myopathy Mission of the CURE ADSSL1 organization is to invest in research and develop treatment options for patients with rare neuromuscular disease caused by mutation in ADSSL1 gene.

• Alliance/Advocacy Organizations

• 150.

Horners Syndrome Awareness Action & Advocacy Foundation Inc

To increase awareness, education and understanding of the signs, symptoms, treatments, recovery challenges and lifestyle changes as a result of Horner’s Syndrome, in addition to facilitating access to education, medical funding and support groups.

• Alliance/Advocacy Organizations

• 151.

Baker-Gordon Syndrome Foundation

The BakerGordon Syndrome Foundation was founded to help families affected by this syndrome make connections with one another.

The Vision of Children Foundation

Dedicated to finding a cure for hereditary childhood blindness and vision disorders.

Lymphoma Research Foundation

The Lymphoma Research Foundation’s mission is to realize the promise of science to eradicate lymphoma and serve the community touched by this disease.