• Alliance/Advocacy Organizations

• 55.

Hht Foundation International Inc

Cure HHT is the only organization in the US advocating for research, education and a cure for Hereditary Hemorrhagic Telangiectasia, Osler-Weber-Rendu Syndrome The official Facebook page for Cure HHT, the world's leading organization working to raise awareness The mission of the HHT Foundation International is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

• Birth Defects, Genetic Diseases Research

• 56.

Canavan Research Foundation, Inc.

Our mission is to fund and support research to cure Canavan Disease and apply these findings to create therapies for other genetic brain diseases.

• Fund Raising and/or Fund Distribution

• 57.

HUNTER SYNDROME FOUNDATION

The Hunter Syndrome Foundation is a 501(c)3 non-profit corporation with a mission to fund potential therapies that will ultimately find a cure for this disorder.

PERSONALITY DISORDER AWARENESS NETWORK INC

PDAN is a nonprofit organization dedicated to projects that help #children, #families and individuals to understand and cope with #personalitydisorders.

Center for Ehlers Danlos Syndrome Alliance Inc

Proudly helping those who have EDS and bring awareness to the condition.

Cloves Syndrome Community

Support, Research & Education to improve the quality of life for ppl with CLOVES.

DDC CLINIC FOR SPECIAL NEEDS CHILDREN

DDC Clinic is a non-profit primary care, education, and research facility.

• Birth Defects, Genetic Diseases Research

• 62.

Rory Belle Foundation

We are a family run foundation established to raise funding and awareness for a gene therapy cure for the NARS1 disease.

Micah Mason Foundation

Named after Micah Mason, a heart warrior, the Foundation was created to gather and provide funding to institutions performing research of treatment of Hypoplastic Left Heart Syndrome and similar Congenital Heart Defects.