• Brain Disorders

• 37.

Families for HoPE, Inc.

Sharing the HoPE in HoloProsEncephaly Nonprofit org serving families and children diagnosed with holoprosencephaly (HPE) We are here to raise awareness of Holoprosencephaly and provide HoPE to families touched by HPE.

Rare Trait Hope Fund

Rare trait Hope Fund facilitates research and provides funding for the development of treatments for a rare disease called Aspartylglucosaminuria (AGU) in hopes to save lives of AGU kids and adults.

Decoding Developmental Epilepsies

We serve two distinct communities. First, we serve those living with SCN8A and their families.

• Birth Defects, Genetic Diseases Research

• 40.

Sanfilippo Hope Initiative

Jarod and Caleb are brothers who suffer from an ultra-rare disease called Sanfilippo Syndrome.

• Birth Defects, Genetic Diseases Research

• 41.

Fam177a1 Research Fund

Founder and President, FAM177A1 Research Fund The mission of the FAM177A1 Research Fund is to improve the lives of those affected by FAM177A1 Associated Disorder through research and development of transformative therapies.

• Human Service Organizations

• 42.

Yoey S Hope Inc

PUBLIC EDUCATION AND AWARENESS ON WOLF-HIRSCHHORN SYNDROME AND CHARITABLE SUPPORT FOR FAMILIES OF CHILDREN WITH WOLF-HIRSCHHORN SYNDROME.

• Nonmonetary Support N.E.C.*

• 43.

Curedrpla Inc

I’m a parent advocate for DRPLA, a rare genetic disease.

• Epilepsy Research

• 44.

Love for Liam Foundation

Love For Liam Foundation Love For Liam Foundation Hope.

• Birth Defects, Genetic Diseases

• 45.

STXBP1 FOUNDATION

Non-profit dedicated to ending STXBP1-related disorders, rare neurodevelopmental and epileptic encephalopathies, and spreading awareness of this rare disease.