• Fund Raising and/or Fund Distribution

• 55.

Ellie White Foundation for Rare Genetic Disorders Inc

We will not give up until a cure for Wolfram syndrome is found for Ellie and the children suffering from this disorder.

Cure LBSL

LBSL is a degenerative brain/spinal cord disease.

• Private Grantmaking Foundations

• 57.

Brian J Kelley Foundation for Hope Inc

Through Brian’s Hope, a 501(c)(3) charitable foundation, we look forward to when no child experiences the devastation of adrenoleukodystrophy (ALD) Through Brian’s Hope, a 501(c)(3) charitable foundation, we look forward to a day when no child will experience the devastation of adrenoleukodystrophy (ALD).

• Patient Services�Entertainment, Recreation

• 58.

Lucys Warriors Foundation Ltd

Where the Impossible is Possible Lucys Warriors Humans with rare disorders and their family members deserve the chance at the best life possible.

• Birth Defects, Genetic Diseases Research

• 59.

Hope for Pdcd Foundation

Fundraising for a cure for Pyruvate Dehydrogenase Complex Deficiency (PDCD) & advancing research for rare diseases.

• Alliance/Advocacy Organizations

• 60.

Stargardtians Inc

Our mission is to raise awareness of Stargardt’s Disease and to create opportunities for people living with Stargardt’s to further their education and develop their own business.

• Specifically Named Diseases

• 61.

Smith-Kingsmore Syndrome Foundation

Smith-Kingsmore Syndrome is a rare genetic disease.

• Medical Specialty Research

• 62.

Curemapk8Ip3 Foundation

Family support network for patients and their families affected by a gene mutation in MAPK8IP3 Page for individuals and families with gene variant MAPK8IP3 Improve the lives of patients and families affected by a MAPK8IP3 gene mutation by performing the following activities: raising community awareness of MAPK8IP3-Related Neurodevelopmental Disorder; facilitating research of MAPK8IP3-Related Neurodevelopmental and related Disorders; collecting and disseminating information and resources relating to MAPK8IP3-Related Neurodevelopmental and related Disorders; supporting those affected by MAPK8IP3-Related Neurodevelopmental and related Disorders; and any other charitable educational or scientific activities that are in furtherance of the Corporation's purposes.

• Nerve, Muscle, and Bone Diseases

• 63.

Cure VCP Disease Inc

Promoting a cure for diseases related to mutations of the Valosin Containing Protein gene ABOUT US FOR PATIENTS FOR RESEARCHERS FOR CLINICIANS EVENTS BLOG GIVE SHOP MORE Finding a cure is in our DNA Cure VCP Disease Inc.