• Birth Defects, Genetic Diseases

• 19.

Hoppys Hope To End Huntingtons Disease

RAISE AWARENESS AND PROVIDE FINANCIAL SUPPORT TO ORGANIZATIONS DEDICATED TO FINDING TREATMENTS, AND ULTIMATELY, A CURE FOR HUNTINGTON'S DISEASE.

• Private Grantmaking Foundations

• 20.

Gavin R Stevens Foundation

Our mission is to raise awareness and increase funding for research, to find a treatment and cure for blindness, focusing on Leber's Congenital Amaurosis (LCA) AWARENESS OF BLINDNESS FROM LCA var ANScustomeridbce0d824930843069bb3f3f1bcfd4038 Web Ecommerce Our Sponsors carryingcolin.

Prader-Willi Syndrome Association | USA

What’s YOUR story. Tweet us and tell us what it’s like #GrowingUpRare We hope you will suggest the PWSA | USA facebook page to your friends.

NEW HOPE RESEARCH FOUNDATION

The New Hope Research Foundation is a non-profit organization dedicated to: - Finding a genetic cure for GM2 gangliosidosis and other lysosomal storage diseases that affect the central nervous system, and - Providing hope to patients and their families currently facing the degenerative and debilitating aspects of these diseases.

• Fund Raising and/or Fund Distribution

• 23.

Better Future 4 U

501(c)(3) nonprofit who’s mission is to fund research that leads to a treatment for individuals with HNRNPU A nonprofit organization looking to create a better future for those affected by HNRNPU and where a treatment for this rare genetic disorder is found.

• Cancer Research

• 24.

Hope Through Hollis Foundation

C. Hollis Richard, was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG) on March 29th, 2016.

• Birth Defects, Genetic Diseases Research

• 25.

Alstrom Angels Corp

www. alstromangels. org Dedicated to raising funds for Alstrom Syndrome genetic and medical research, increasing awareness of the rare disease among the general public and medical communities, and improving family support for those affected by the Syndrome.

• Fund Raising and/or Fund Distribution

• 26.

The Children's Rare Disorders Fund

Dedicated to curing rare genetic disorders Founded in July 2022 by parents of a toddler affected by FOXG1, The CRD Fund focuses on under served communities in the rare disorder space.

• Fund Raising and/or Fund Distribution

• 27.

DHPS FOUNDATION

Leading the way in DHPS Deficiency Disorder research and education in order to find treatment, and a cure #curedhps #raredisease Our genetics make us unique our struggles and triumphs unite us.