• Alliance/Advocacy Organizations

• 352.

Cystinosis Research Network, Inc.

Cystinosis Research Network is dedicated to supporting research, providing family outreach & educating the public & medical communities about #cystinosis The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating cystinosis research.

Hope4Harper

Hope4Harper is a grassroots organization designed to provide hope to those living with CDKL5 deficiency and other seizure disorders by fostering awareness and supporting research.

• Birth Defects, Genetic Diseases Research

• 354.

Sanfilippo Hope Initiative

Jarod and Caleb are brothers who suffer from an ultra-rare disease called Sanfilippo Syndrome.

• Research Institutes and/or Public Policy Analysis

• 355.

Riaan Research Initiative Inc

501(c)(3) non-profit organization hunting for a cure for rare and life-limiting genetic diseases that hurt children, starting with Cockayne syndrome.

• Specifically Named Diseases Research

• 356.

Recurrent Meningitis Association Inc

To support those affected by Recurrent Meningitis and help fund research to find a cure.

• Brain Disorders

• 357.

Help 4 HD International

NY’s foremost venture community. We combine space, programming, expertise, and capital to accelerate success for exceptional founders and startups.

Growing for Inclusion Inc

Through our inclusion programs, people with disabilities find an adequate space in each of the areas in which they develop.

• Specifically Named Diseases

• 359.

Jansens Foundation

Founder & Executive Director of The Jansen's Foundation.

• Alliance/Advocacy Organizations

• 360.

LGMD AWARENESS FOUNDATION INC

Advocating - Educating - Celebrating limb-girdle muscular dystrophy (LGMD) MeetGirdie LGMD Awareness Day Toolkit Join the LGMD Awareness Foundation in our mission to shine a global spotlight on limbgirdle muscular dystrophy LGMD and champion the cause for improved access to diagnosis care and treatment for those living with this condition.