• Public Foundations

• 334.

BARTH SYNDROME FOUNDATION INC

Barth Syndrome Foundation - saving lives through education, advances in treatments, and finding a cure for Barth syndrome.

Huntington's Disease Society of America, Inc.

The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease.

• Alliance/Advocacy Organizations

• 336.

Bobby Jones Chiari & Syringomyelia Foundation

The Bobby Jones Chiari & Syringomyelia Foundation is built on leadership, vision & commitment to find a cure for #Chiari, #syringomyelia & related disorders.

• Brain Disorders

• 337.

National Organization of Disorders of the Corpus Callosum

The NODCC is the leading nonprofit dedicated to providing education and enhancing lives of those with disorders of the corpus callosum.

• Nerve, Muscle, and Bone Diseases

• 338.

National Ataxia Foundation Incorporated

Our mission is to accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.

• Down's Syndrome

• 339.

MONTANA DOWN SYNDROME ASSOCIATION

Our mission is to honor and nurture the extraordinary lives of people with Down syndrome by advocating for them as well as providing educational, financial, social, and emotional support.

• Alliance/Advocacy Organizations

• 340.

Coffin-Siris Syndrome Foundation

Coffin-Siris Syndrome Foundation is a 501c3 that exists to connect, support, and inform those affected by Coffin-Siris Syndrome and related disorders and promote related research.

CureLGMD2i Foundation

The CureLGMD2i Foundation strives to raise awareness and to support scientific research that is geared directly toward finding a treatment or cure for Limb Girdle Muscular Dystrophy type 2i (LGMD2i).

• Specifically Named Diseases Research

• 342.

Dion Foundation for Children with Rare Diseases Inc

Support research. Find a cure. Help children and families fight rare diseases.