Similar organisations to SHINE Syndrome Foundation Inc
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Eye Diseases, Blindness & Vision Impairment
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316.
Aniridia Foundation International
Aniridia Foundation International's mission is to unite the Aniridia Syndrome community, physicians, and researchers, to work together towards advancing knowledge and sight saving treatments through research, education, and ultimately a cure.
Legal name of organization: USA Aniridia Network dba Aniridia Foundation intl
Chromosome 22 Central Inc
🧬C22C official. Support & info for chromosome 22 disorders.
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The Global Foundation for Peroxisomal Disorders
The GFPD's mission is to improve the lives of individuals with peroxisomal disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.
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SHINE TALLAHASSEE INC
A nonprofit with a mission to provide teens and adults with special needs in Tallahassee and surrounding areas opportunities to be themselves, do their best, have fun with friends and know they are loved and made with a purpose.
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Fund Raising and/or Fund Distribution
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Life for Liam and Friends Foundation
Mission to support families who are impacted by NPC and help find a cure through connecting NPC families, spreading awareness, and supporting medical research.
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PNRI unravels the powerful mysteries of genetics to drive future medical breakthroughs.
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Nerve, Muscle, and Bone Research
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Hypophosphatasia education and support for families and caregivers with this rare metabolic bone disease.
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Fund Raising and/or Fund Distribution
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Foundation to Fight H-ABC
The Foundation to Fight H-ABC/Tubb4a is a non profit 501(c)3 created to help find a cure for Hypomyelination with Atrophy of Basal ganglia and Cerebellum (H-ABC) which is caused by the Tubb4a gene mutation Fund Research.
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Rockville
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Fund Raising and/or Fund Distribution
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TO CURE A ROSE FOUNDATION
At To Cure A Rose Foundation, we’re on a mission to make genetic treatments faster, more affordable, and within reach—so that the next child born with a rare disease can receive a customized drug within days of diagnosis.
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