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Similar organisations to SHINE Syndrome Foundation Inc

Community Rebuilding

Lennox-Gastaut Syndrome (LGS) Foundation

The LGS Foundation is dedicated to improving the lives of individuals impacted by LGS through advancing research, awareness, education, and family support.

Social Rank

89099

Location

San Diego

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 398.

Sdhb Coalition Inc

Our mission is to educate healthcare professionals and patients on the SDHB genetic germline mutation as well as its role and impact in this orphan disease SEE SCHEDULE O ABOVE Vision Mission Our mission is to educate healthcare professionals and patients on the SDHB genetic germline mutation as well as its role and impact in this orphan disease namely Pheochromocytoma and Paraganglioma.

Social Rank

501

Location

Doylestown

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 399.

Haystack Project Inc

We are committed to the Ultra Rare Disease Community.

Social Rank

469

Location

Pinehurst

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 400.

COALITION TO CURE CALPAIN 3

Coalition to Cure Calpain 3 (C3) has a pinpoint focus: to drive research towards a cure for limb-girdle muscular dystrophy type 2A (LGMD2A/R1, a form of Calpainopathy).

Location

Westport

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Community Rebuilding
  • Human Services - Multipurpose & Other N.E.C.

  • 401.

Atrx Research Alliance

ATRX Research Alliance is a global community dedicated to improving the quality of life of those affected by ATRX syndrome and accelerating research to find treatment.

Location

Rio Rancho

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 402.

Inad Warriors Incorporated

INAD Warriors Inc. is organized exclusively for charitable educational and scientific purposes including for such purposes the make of distributions to organizations or individuals that qualify as exempt under section 501c3 of the Internal Revenue Code or the corresponding section of any future federal tax code INAD WARRIORS INC.

Location

Indianapolis

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 403.

T21 Project Inc

a photography project celebrating Trisomy 21, also known as Down syndrome.

Social Rank

3544

Location

Wilmington

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Community Rebuilding

SMA ANGELS CHARITY INC

100% Volunteer, 501 (c)(3) non-profit dedicated in the fight against Spinal Muscular Atrophy (SMA) .

Social Rank

1108

Location

RICHMOND HILL

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Community Rebuilding
  • Scholarships, Student Financial Aid, Awards

  • 405.

MATTHEW RENK FOUNDATION

jrenkmatthewrenkfoundation. org The Matthew Renk Foundation is an approved IRS Code section 501c3 tax entity.

Location

BUCKINGHAM

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