Canavan Foundation, Inc.

CANAVAN FOUNDATION Preventing Childhood Genetic Disease Through Education We have a blog.

• Epilepsy

• 29.

Where Theres A Will Theres A Cure

We are going to cure X-Linked Myotubular Myopathy.

• Specifically Named Diseases Research

• 30.

GRACE SCIENCE FOUNDATION

We are changing how scientific research is done.

Ring14 USA Outreach Inc

Ring14 Syndrome, Rare disease, Rare epilepsy, nonprofit, support, advocacy, research Ring14 USA is nonprofit 501(c)(3) that supports children and families affected by the rare syndromes of the 14th chromosome, such as Ring14 syndrome.

• Birth Defects, Genetic Diseases

• 32.

17q12 Foundation

Creating a community for those affected by 17q12 syndromes while raising awareness and encouraging research.

• Alliance/Advocacy Organizations

• 33.

Nrxn1 Network

Our mission is to build a collaborative network of families, clinicians, and scientists in order to support individuals affected by NRXN1 disorder.

• Cultural/Ethnic Awareness

• 34.

May5Foundation

The May5Foundation and founder Dr. Alexia Mays are committed to supporting the communities of sickle cell, grief & loss, thru research ,advocacy &awareness The May5Foundation is centered in the values of dedication to education,community and service WE DO AMAYSING THINGS Programs and Events Support Our Efforts Who We Are More Community Events 2024 Warrior of The Year .

• Specifically Named Diseases

• 35.

Marshall-Smith Syndrome Organization of the USA Inc

The mission of Marshall-Smith Syndrome Organization of the USA, Inc.

CANAVAN RESEARCH ILLINOIS

Join the worldwide mission to cure Canavan disease.