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Similar organisations to ASXL RARE RESEARCH ENDOWMENT FOUNDATION

Community Rebuilding

Alport Syndrome Foundation Inc

Improving patient lives through education, empowerment, advocacy, and research with a vision to conquer #Alportsyndrome.

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The Global Foundation for Peroxisomal Disorders

The GFPD's mission is to improve the lives of individuals with peroxisomal disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.

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3600

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  • Birth Defects, Genetic Diseases

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International Rett Syndrome Association, Inc.

We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder.

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Community Rebuilding
  • Birth Defects, Genetic Diseases Research

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Fam177a1 Research Fund

Founder and President, FAM177A1 Research Fund The mission of the FAM177A1 Research Fund is to improve the lives of those affected by FAM177A1 Associated Disorder through research and development of transformative therapies.

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434

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Community Rebuilding
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Trpm3 Foundation

Patient advocacy and support for those affected by #TRPM3 #ionchannel related disorders.

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Community Rebuilding

Ellison Development Center for Asd Inc

Home Services About Contact Close Navigation Donate Tulsa Oklahomas Free Help Resource Center for Autism Spectrum Disorder.

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Broken Arrow

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

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Tbc1D24 Foundation

Tbc1d24 foundation is a research organization and connecting site for caregivers, families, and those diagnosed with Tbc1d24 mutations.

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1600

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Community Rebuilding
  • Alliance/Advocacy Organizations

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Finding Nori Foundation

The Finding Nori Foundation Home About Meet the Team Finding Joy Blog Resources Publications DONATE Contact Upcoming Events More Raising research funding for PAX5 and ALG13 related neurological disordersEmpowering families with ultra rare undiagnosed diseases to find answers Our Mission Our mission is to advance scientific research through fundraising and advocacy for ultra rare undiagnosed genetic disorders.

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Gilbert

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Community Rebuilding
  • Birth Defects, Genetic Diseases Research

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THE NATIONAL FRAGILE X FOUNDATION

News and information from the National Fragile X Foundation about Fragile X syndrome, FXTAS, FXPOI and the other Fragile X-associated disorders Since 1984, the National Fragile X Foundation has been providing knowledge, resources and tools to families living with Fragile X and the professionals support them throughout their lifespan.

Social Rank

19697

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WASHINGTON

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