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Similar organisations to ASXL RARE RESEARCH ENDOWMENT FOUNDATION

Community Rebuilding

Fraxa Research Foundation, Inc.

FRAXA's mission is to find effective treatments and ultimately a cure for Fragile X syndrome and are likely to help people affected by autism.

Social Rank

5700

Location

Newburyport

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 20.

International Rett Syndrome Association, Inc.

We are transforming lives every day in our fight to treat and cure Rett syndrome and better the lives of families living with this devastating disorder.

Social Rank

32001

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 21.

Curears A NJ Nonprofit Corporation

Our mission is to spread awareness, connect and provide support to affected families and fund research for the ultra-rare mtARS genes.

Social Rank

1179

Location

Raritan

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Community Rebuilding
  • Specifically Named Diseases

  • 22.

Abetalipoproteinemia and Related Disorders Foundation

Abetalipoproteinemia and Related Disorders Foundation is a non-profit, volunteer organization that provides guidance on needed scientific research, diagnosis, and management of abetalipoproteinemia and related hypolipidemias.

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48

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Woodbury

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Community Rebuilding

Malan Syndrome Foundation Inc

Malan syndrome is a rare genetic disorder that is the result of a change in the NFIX gene.

Social Rank

2217

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Old Bridge

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Community Rebuilding
  • Birth Defects, Genetic Diseases Research

  • 24.

International FOXP1 Foundation

Our mission is to build a global community that empowers and supports families and individuals with FOXP1 syndrome by sharing knowledge, inspiring hope, supporting research, and raising awareness.

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521

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Mendenhall

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Community Rebuilding
  • Birth Defects, Genetic Diseases Research

  • 25.

Channeling Hope Foundation

Channeling Hope Foundation A community of researchers and families driven to advance care and develop treatments for those affected by NALCNrelated disorders.

Location

San Antonio

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Community Rebuilding
  • Birth Defects, Genetic Diseases Research

  • 26.

THE NATIONAL FRAGILE X FOUNDATION

News and information from the National Fragile X Foundation about Fragile X syndrome, FXTAS, FXPOI and the other Fragile X-associated disorders Since 1984, the National Fragile X Foundation has been providing knowledge, resources and tools to families living with Fragile X and the professionals support them throughout their lifespan.

Social Rank

19697

Location

WASHINGTON

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 27.

BFLS Incorporated

Mom on a mission to raise awareness and funds for research for the rare genetic disorder Börjeson-Forssman-Lehman Syndrome or BFLS� Born Fierce.

Social Rank

579

Location

Bakersfield

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