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Similar organisations to ASXL RARE RESEARCH ENDOWMENT FOUNDATION

Community Rebuilding

Autism Support of Imperial County Inc

Welcome to Autism Support of Imperial County, a support network for autistic individuals and their families.

Social Rank

4300

Location

El Centro

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 2.

The Children's Rare Disorders Fund

Dedicated to curing rare genetic disorders Founded in July 2022 by parents of a toddler affected by FOXG1, The CRD Fund focuses on under served communities in the rare disorder space.

Social Rank

32

Location

New York

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Community Rebuilding
  • Promotion of Business (Chambers of Commerce)

  • 3.

Aset-the Neurodiagnostic Society

Mid-Atlantic Neurodiagnostic Society MidAtlantic Neurodiagnostic Society A Chapter of ASET Signed in as fillergodaddy.

Social Rank

2

Location

HUNTINGTON

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Community Rebuilding

Freddie Ford Family Foundation

Spreading autism awareness and encouraging acceptance.

Social Rank

1302

Location

SAINT LOUIS

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 5.

Ctx Alliance NFP

Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease.

Social Rank

70

Location

Lansdale

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Community Rebuilding
  • Epilepsy Research

  • 6.

Shay Emma Hammer Research Foundation

We’re working to document the first 1000 cases of SCN8A gene variants and connect families Advancing epilepsy awareness.

Social Rank

780

Location

Tucson

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 7.

STXBP1 FOUNDATION

Non-profit dedicated to ending STXBP1-related disorders, rare neurodevelopmental and epileptic encephalopathies, and spreading awareness of this rare disease.

Social Rank

3921

Location

HOLLY SPRINGS

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 8.

LEO'S LIGHTHOUSE FOUNDATION INC

Leo’s Lighthouse is a non-profit making a difference in the lives of children affected by Bainbridge-Ropers Syndrome.

Social Rank

5

Location

SLEEPY HOLLOW

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Community Rebuilding
  • Single Organization Support

  • 9.

THE MED13L FOUNDATION INC

Supporting MED13L families through awareness, research, and community.

Social Rank

1054

Location

BARRINGTON

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