APBD RESEARCH FOUNDATION

Supporting individuals and families affected by Adult Polyglucosan Body Disease (APBD), and accelerating improved APBD diagnoses, care and treatment options.

Little Hercules Foundation

We serve the rare disease community through access advocacy and good policy.

• Fund Raising and/or Fund Distribution

• 30.

Eleanor Kaplan Foundation Inc

To raise funds and awareness to develop cures for Ultra Rare Neurodegenerative Diseases.

Rare New England Inc

Rare New England's Mission is to bring together New England patients and families touched by rare and complex disorders.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 32.

Rare Genes Movement

Our vision is to see every child have access to proper medical, therapeutic, and educational resourc Our purpose is to raise awareness and funds to help families of children with rare genetic disorder.

• Patient Services�Entertainment, Recreation

• 33.

HLH Heroes Foundation Not for Profit

"NO ONE FIGHTS ALONE" The mission of HLH Heroes Foundation is to provide support to individuals and families impacted by HLH.

• Fund Raising and/or Fund Distribution

• 34.

BENEFIT OTHERS FOUNDATION

Helping to overcome hardships and providing opportunities for children and their families Who We Are Benefit Others Foundation is a nonprofit 501c3 organization committed to enriching the lives of others.

• Fund Raising and/or Fund Distribution

• 35.

WARDS FOUNDATION

Save the Date for A Rare Affair Saturday February 10 2024 at Charlotte Country Club A unique wine experience with access to rare varietals vineyards and vintages benefiting families facing rare diseases.

• Cancer Research

• 36.

LAUGHLIN FAMILY FOUNDATION FOR RARE CANC

EVERY CANCER DESERVES A VOICEAND A CURE RARE CANCERS ARE OFTEN MORE DIFFICULT TO PREVENT DIAGNOSE AND TREAT THAN MORE COMMON CANCERS OFTEN LEADING TO POOR PROGNOSIS AND OUTCOMES FOR PATIENTS RECENT NEWS Keep up to date on the latest from The Laughlin Family Foundation including our events and news where we are and what were doing.