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Similar organisations to Rare Disease Company Coalition Inc

Community Rebuilding
  • Diseases, Disorders, Medical Disciplines N.E.C.

  • 64.

LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC

Patient-driven solutions for complex lymphatic anomalies: GLA, GSD, KLA, CCLA • Support-Research-Education • Somatic mutations PIK3/mTor & RAS/MAPK pathways Patient advocacy group dedicated to patient driven solutions for complex lymphatic anomalies We connect patients and families to peers and networks of care, partner to advance new research, and educate the medical community to help all people navigating complex lymphatic anomalies have hope for a healthier tomorrow.

Social Rank

2896

Location

Saint Petersburg

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Community Rebuilding
  • Remedial Reading, Reading Encouragement

  • 65.

Firefly Fund

A nonprofit that provides crucial support for research and education necessary to accelerate cures for rare genetic diseases that affect children.

Social Rank

2142

Location

Philadelphia

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Community Rebuilding

Coming Together For A Cure, Inc

A 501c3 nonprofit dedicated to advancing stem cell therapy for Duchenne MD and other rare diseases.

Social Rank

2400

Location

Wichita

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 67.

Sdhb Coalition Inc

Our mission is to educate healthcare professionals and patients on the SDHB genetic germline mutation as well as its role and impact in this orphan disease SEE SCHEDULE O ABOVE Vision Mission Our mission is to educate healthcare professionals and patients on the SDHB genetic germline mutation as well as its role and impact in this orphan disease namely Pheochromocytoma and Paraganglioma.

Social Rank

501

Location

Doylestown

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Community Rebuilding
  • Birth Defects, Genetic Diseases Research

  • 68.

Chronic Lymphocytic Leukemia Foundation

LEUKEMIA RESEARCH AND EDUCATION Our Mission Chronic Lymphocytic Leukemia is the most common form of adult Leukemia in the United States and the western world.

Location

Houston

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 69.

Charlie Elenore Foundation

About Our Programs News Events Contact More.

Location

San Diego

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Community Rebuilding
  • Cancer

  • 70.

SOTERIA Precision Medicine Foundation Inc

We are a non-profit whose mission is to support a superior approach to cancer treatment, where the patient is at the center of globally curated resources.

Social Rank

320

Location

La Jolla

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Community Rebuilding

Rarekc Foundation

Our mission is to drive innovation in the diagnosis, care and treatment of rare diseases by connecting and inspiring our community.

Location

Overland Park

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Community Rebuilding
  • Nerve, Muscle, and Bone Diseases

  • 72.

Lynk Up World (LUW)

Lynk Up • World (LUW) is on a mission to bring meaningful connection to children & families impacted by rare diseases through art, support and innovation.

Location

Miami Beach

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