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Similar organisations to Plasminogen Deficiency Foundation

Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 28.

Renu Syndrome United

ReNU Syndrome Variants in RNU42 Uncovered as One of the Most Prevalent Causes of Neurodevelopmental Disorders Discovery Renews Hope for Affected Families Worldwide Characteristics may include Developmental Motor and Intellectual Delays Absent or Delayed Speech and Language Seizures Brain Abnormalities Small Head Size Distinct Facial Features Low Muscle Tone and Drooling Autism Spectrum Disorder Short Stature BoneSkeletal Anomalies Vision Issues and more More Information Big thanks to the researchers clinicians geneticists in these articlesfor this longawaited revelation.

Location

Northlake

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Community Rebuilding
  • Epilepsy

  • 29.

Where Theres A Will Theres A Cure

We are going to cure X-Linked Myotubular Myopathy.

Social Rank

1742

Location

Geneva

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Community Rebuilding

Rare Trait Hope Fund

Rare trait Hope Fund facilitates research and provides funding for the development of treatments for a rare disease called Aspartylglucosaminuria (AGU) in hopes to save lives of AGU kids and adults.

Location

Belle Chasse

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Community Rebuilding
  • Patient Services�Entertainment, Recreation

  • 31.

Spark Hope Inc

FA Adventure Day 2020 is online this year with 2groups your choice of 818 or 819.

Location

Haverhill

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Community Rebuilding

Aplastic Anemia and MDS International Foundation

Aplastic Anemia and MDS Int'l Found supports patients & families with #aplastic anemia, #MDS, #PNH, and related bone marrow failure diseases #AML #PRCA #CMML Fighting Bone Marrow Failure Diseases through Patient Support and Research -Aplastic Anemia, MDS, PNH The Aplastic Anemia & MDS International Foundation empowers individuals diagnosed with aplastic anemia, myelodysplastic syndrome (MDS), paroxysmal nocturnal hemoglobinuria (PNH) and their support network by providing timely information, a community of support, improved treatment through health provider education, and hope for a cure through promotion of research.

Social Rank

19378

Location

Rockville

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 33.

Lilliana’s Heart Association Inc

Charity Nonprofit Organization providing support to families affected by Congenital Heart Disease and Heterotaxy Syndrome Awareness and Support for families and kids battling CHD and Heterotaxy.

Social Rank

2334

Location

Ontario

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Community Rebuilding
  • Human Services - Multipurpose & Other N.E.C.

  • 34.

Prader-Willi Syndrome Arizona Association

Arizona families navigating PraderWilli syndrome together.

Location

Tucson

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Community Rebuilding
  • Specifically Named Diseases

  • 35.

FOUNDATION FOR PRADER-WILLI

Foundation for Prader-Willi Research focused on treatments & cure for PWS Our Research FPWRs research programs aim to develop new therapies that will improve the health and wellbeing of those with PWS.

Social Rank

2031

Location

COVINA

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Community Rebuilding

MARYLAND ORTHOPAEDIC ASSOCIATION

Welcome to MOA The Maryland Orthopaedic Associations purpose is to give Maryland Orthopaedists a voice and representation for your issues.

Location

TOWSON

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