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Similar organisations to Plasminogen Deficiency Foundation

Community Rebuilding

GBS-CIDP FOUNDATION INTERNATIONAL

To support those affected by GBS|CIDP & variants so each patient obtains an early diagnosis, proper treatment &the opportunity for a full recovery #raredisease Our commitment is to support those affected by GBS, CIDP, MMN & its variants.

Social Rank

19195

Location

Conshohocken

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Community Rebuilding
  • Public Health Programs

  • 20.

United Pompe Foundation

SUPPORT RESEARCH FOR POMPE DISEASE AND HELP PATIENTS DEALING WITH POMPE DISEASE United Pompe Foundation The United Pompe Foundation was formed to assist patients andor their families with medical costs and other expenses that these patents and families face and may not be able to cover or fully cover through their insurance.

Location

Fresno

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Community Rebuilding
  • Diseases, Disorders, Medical Disciplines N.E.C.

  • 21.

U R Our Hope

Non-profit serving individuals with undiagnosed & rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment Assisting those with undiagnosed or rare disorders at any age and any stage.

Social Rank

2304

Location

AUSTIN

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Community Rebuilding

The Global Foundation for Peroxisomal Disorders

The GFPD's mission is to improve the lives of individuals with peroxisomal disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.

Social Rank

3600

Location

Tulsa

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Community Rebuilding

Cloves Syndrome Community

Support, Research & Education to improve the quality of life for ppl with CLOVES.

Social Rank

3769

Location

Browns Point

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Community Rebuilding

Prader-Willi Syndrome Association | USA

What’s YOUR story. Tweet us and tell us what it’s like #GrowingUpRare We hope you will suggest the PWSA | USA facebook page to your friends.

Social Rank

16178

Location

Legal name of organization: Prader-Willi Syndrome Association | USA

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Community Rebuilding
  • Public Foundations

  • 25.

Orphan Disease Collective Inc

Funding research of rare diseases, supporeting promising work to develop treatments and cures.

Location

Chicago

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 26.

BENEFIT OTHERS FOUNDATION

Helping to overcome hardships and providing opportunities for children and their families Who We Are Benefit Others Foundation is a nonprofit 501c3 organization committed to enriching the lives of others.

Location

BRANFORD

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 27.

CGD ASSOCIATION OF AMERICA INC

We are an independent, nonprofit organization that is committed to advocating for patients and carriers with CGD.

Social Rank

408

Location

WEST PALM BEACH

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