National Aphasia Association, Inc.

International PPA Awareness Day is April 4th Skip Links Resources For We advocate for people with aphasia and their families Aphasia is an acquired communication disorder that impairs a person039s ability to process language but does not affect intelligence.

PHEO ALLIANCE

Advocacy, awareness and support for those affected by #pheochromocytoma/ #paraganglioma The mission of the Pheo Para Alliance is to invest in research to accelerate treatments and cures while empowering patients, their families, and medical professionals through advocacy, education and a global community of support.

• Professional Societies & Associations

• 255.

Gout Hyperuricemia and Crystal-Associated Disease Network

LAUNCH AND SUPPORT NOVEL RESEARCH AND EDUCATION INITIATIVES TO HELP FILL THE KNOWLEDGE GAP IN THE PATHOGENESIS, DIAGNOSIS, TREATMENT, AND OUTCOMES OF GOUT, HYPERURICEMIA, AND CRYSTAL DEPOSITION-ASSOCIATED DISORDERS (INCLUDING CARDIOVASCULAR DISEASES); FACILITATE THE SHARING OF RESOURCES AND INFORMATION RELATED TO GOUT, HYPERURICEMIA, AND CRYSTAL-ASSOCIATED DISEASES; AND FOSTER NETWORKING AND COLLABORATION ACROSS RELATED MEDICAL DISCIPLINES AND SCIENTIFIC COMMUNITIES THAT CARE FOR AND STUDY THESE CONDITIONS.

• Alliance/Advocacy Organizations

• 256.

Allo Hope Foundation

Our mission is to prevent any harm, stillbirth or infant death caused by #Alloimmunization and Hemolytic Disease of the Fetus and Newborn (#HDFN) Our mission is to prevent harm, stillbirth and infant death caused by alloimmunization and HDFN.

• Fund Raising and/or Fund Distribution

• 257.

The Children's Rare Disorders Fund

Dedicated to curing rare genetic disorders Founded in July 2022 by parents of a toddler affected by FOXG1, The CRD Fund focuses on under served communities in the rare disorder space.

International Cytokine and Interferon Society Inc

The ICIS is devoted to research in the fields of cytokine, interferon and chemokine cell biology.

• Alliance/Advocacy Organizations

• 259.

Rare Disease Company Coalition Inc

We are a coalition of life science companies committed to discovering, developing & delivering rare disease treatments for the patients we serve.

• Professional Societies & Associations

• 260.

Pharmacogenomics Research Network Inc

WildApricot by @Personifycorp helps over 32,000 membership organizations with an all-in-one solution.

NATIONAL ASSOCIATION FOR PROTON THERAPY

The NAPT is an independent nonprofit organization founded in 1990 to educate and increase awareness about the clinical benefits of proton therapy.