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Similar organisations to International Pnh Interest Group

Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 235.

Kentucky Hemophilia Foundation Inc

The Kentucky Hemophilia Foundation assists individuals with hemophilia and similar bleeding disorders through education, advocacy, and support services and by promoting research for a cure.

Location

Louisville

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Community Rebuilding

DDC CLINIC FOR SPECIAL NEEDS CHILDREN

DDC Clinic is a non-profit primary care, education, and research facility.

Social Rank

682

Location

Middlefield

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Community Rebuilding

Rare New England Inc

Rare New England's Mission is to bring together New England patients and families touched by rare and complex disorders.

Social Rank

3272

Location

ATTLEBORO

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Community Rebuilding
  • Brain Disorders

  • 238.

Subramaniam Foundation for Global Brain Health

Founder & CEO: Dr. Thirusivapragasam Subramaniam (Siva) Create innovative technologies that will eradicate the disability of Hydrocephalus in children.

Social Rank

138

Location

Rochester

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Community Rebuilding
  • Private Independent Foundations

  • 239.

The Bobby Engram Foundation

The Bobbi Engram Foundation (BEF) is a private non-profit organization dedicated to serving individuals suffering with Sickle Cell Anemia.

Location

Columbia

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 240.

Iqsec2 Research and Advocacyfoundation

Welcome to IQSEC2. ORG Research and Advocacy Foundation MISSION STATEMENT Vision In the next 10 years we will dramatically improve the quality of life for those affected by IQSEC2 mutations through 1 the establishment and dissemination of standard treatment and therapy protocols to medical practitioners and therapists worldwide 2 support of research and development of new and innovative treatments for IQSEC2 related diseases and 3 uplift support all loved ones of those affected by IQSEC2 through an advocate community and its allies.

Location

Frisco

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Community Rebuilding
  • Epilepsy Research

  • 241.

Shay Emma Hammer Research Foundation

We’re working to document the first 1000 cases of SCN8A gene variants and connect families Advancing epilepsy awareness.

Social Rank

780

Location

Tucson

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Community Rebuilding
  • Public Health Programs

  • 242.

INTERNATIONAL LYMPHOMA RADIATION

International Lymphoma Radiation Oncology Group ABOUT US Welcome.

Location

NEW YORK

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Community Rebuilding
  • Research Institutes and/or Public Policy Analysis

  • 243.

National PERT Consortium Inc

The PERT Consortium is the premier organization dedicated to establishing optimizing and expanding multidisciplinaryPulmonary Embolism Response Teams PERT and their quality care for pulmonary embolism PE patients.

Location

Nashua

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