INTERNATIONAL FOUNDATION FOR CDKL5 RESEARCH

This account used to avoid confusion by impersonation - please find us @CDKL5_IFCR To treat and cure CDKL5 Deficiency Disorder by funding scientific research, while helping affected individuals and their families to thrive.

Decoding Developmental Epilepsies

We serve two distinct communities. First, we serve those living with SCN8A and their families.

• Fund Raising and/or Fund Distribution

• 273.

Gardaccess Inc

Accelerating access to quality healthcare Addressing Unmet Needs in Rare Diseases Access to lifesaving medicine programs in low and middleincome countries LMIC presents a significant unmet need for patients living with rare disorders.

• Alliance/Advocacy Organizations

• 274.

Marshalls Mountain Inc

Marshalls Mountain Pompe Disease Fundraising Marshalls Mountain was formed after our son was diagnosed with Pompe disease.

• Birth Defects, Genetic Diseases Research

• 275.

Valerias Foundation for Kcnt1 Research Inc

#rettevaleria #savevaleria #helpvaleria #supportvaleria #valeriasKCNT1 #raredisease #epilepsy #geneticdisorder #meinestimmefuereinleben #teamvaleria The Valeria Foundation is committed to achieving that: [+] to promote knowledge about the existence and cure of orphan diseases.

Friends of Patients at the NIH Inc

Providing help & hope for those seeking lifesaving treatments at the NIH.

• Cancer

• 277.

COLLABORATIVE GROUP OF THE AMERICAS

Join CGAIGC Broadcast Your Message Donate Contact Us More COLLABORATIVE GROUP OF THE AMERICAS ON INHERITED GASTROINTESTINAL CANCER CGAIGC About News Annual Meeting Resources Grants Awards More Our Mission Vision Commitment Register Join Us Donation Sponsorship Opportunities Upcoming CGAIGC Events Check out what CGA has planned over the coming months.

• Birth Defects, Genetic Diseases

• 278.

THINKGENETIC FOUNDATION INC

Helping those living with a genetic disease by shortening the time to diagnose a genetic condition and providing actionable, patient-focused guidance.

• Single Organization Support

• 279.

CENTER FOR BIOMEDICAL RESEARCH AND

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