APBD RESEARCH FOUNDATION

Supporting individuals and families affected by Adult Polyglucosan Body Disease (APBD), and accelerating improved APBD diagnoses, care and treatment options.

• Cancer

• 227.

Tarlov Cyst Disease Foundation

The Tarlov Cyst Disease Foundation is a volunteer-based, 501(c)(3) non-profit foundation dedicated to the research, improved diagnosis and development of successful treatments and outcomes for symptomatic Tarlov cysts.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 228.

LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC

Patient-driven solutions for complex lymphatic anomalies: GLA, GSD, KLA, CCLA • Support-Research-Education • Somatic mutations PIK3/mTor & RAS/MAPK pathways Patient advocacy group dedicated to patient driven solutions for complex lymphatic anomalies We connect patients and families to peers and networks of care, partner to advance new research, and educate the medical community to help all people navigating complex lymphatic anomalies have hope for a healthier tomorrow.

• Fund Raising and/or Fund Distribution

• 229.

Curears A NJ Nonprofit Corporation

Our mission is to spread awareness, connect and provide support to affected families and fund research for the ultra-rare mtARS genes.

• Fund Raising and/or Fund Distribution

• 230.

Life for Liam and Friends Foundation

Mission to support families who are impacted by NPC and help find a cure through connecting NPC families, spreading awareness, and supporting medical research.

• Specifically Named Diseases

• 231.

YBRP Inc

YBRP is a non-profit organization whose mission is to positively impact the lives of individuals with HNRNPH2 genetic variations.

• Birth Defects, Genetic Diseases

• 232.

Mitchell and Friends Foundation

To raise awareness of Mitchell Syndrome and support research into possible treatments and cures Raising awareness of Mitchell Syndrome and supporting families and children with this rare neurological disease.

Kindness for Kimberlee

Kindness for Kimberlee is a non-profit organization helping children affected by Steven's-Johnson Syndrome and Toxic Epidermal Necrolysis.

• Human Service Organizations

• 234.

NATIONAL ORGANIZATION FOR TARDIVE DYSKINESIA INC

National Organization for Tardive Dyskinesia (NOTD) is the first and only national organization in the U.