• Fund Raising and/or Fund Distribution

• 172.

HOPE FOR TRISOMY 13 and 18 INC

Hope for Trisomy 13 and 18 is a 501(c)(3) raising awareness and supporting families.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 173.

U R Our Hope

Non-profit serving individuals with undiagnosed & rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment Assisting those with undiagnosed or rare disorders at any age and any stage.

• Private Grantmaking Foundations

• 174.

Gavin R Stevens Foundation

Our mission is to raise awareness and increase funding for research, to find a treatment and cure for blindness, focusing on Leber's Congenital Amaurosis (LCA) AWARENESS OF BLINDNESS FROM LCA var ANScustomeridbce0d824930843069bb3f3f1bcfd4038 Web Ecommerce Our Sponsors carryingcolin.

• Neurology, Neuroscience

• 175.

Down With Dystonia

Our Mission Down with Dystonia strives to support, educate, and empower people living with dystonia and their families while raising awareness about this third most common movement disorder.

• Birth Defects, Genetic Diseases

• 176.

Fragile X Resource Center of Missouri

The mission of the Fragile X Resource Center of Missouri is to benefit the lives of individuals with Fragile X Disorders and their families through support, education, public awareness, and advocacy.

• Alliance/Advocacy Organizations

• 177.

Young Genetic Stroke Alliance

Raising awareness and educating the community on all things related to this rare disease.

• Health Support Services

• 178.

Jake S Got This Inc

Jake's got this is a pay if forward foundation.

Rarekc Foundation

Our mission is to drive innovation in the diagnosis, care and treatment of rare diseases by connecting and inspiring our community.

• Birth Defects, Genetic Diseases

• 180.

HNRNP FAMILY FOUNDATION

Nonprofit dedicated to serving those impacted by HNRNP-Related Rare Neurodevelopmental Disorders through supporting community and research Home Donate Events Learn Projects Join our Registry Join our Researcher Registry Shop Contact and Connect Submit your story HNRNPC Item HNRNPH1RNDD HNRNPH2RNDD More Our Mission The HNRNP Family Foundation is dedicated to improving the lives of patients and families around the world that live with rare HNRNPRelated Neurodevelopmental Disorders HNRNPRNDDs.