• Single Organization Support

• 190.

INTERNATIONAL WAGR SYNDROME ASSOCIATION

The IWSA represents more than 350 members in 45 countries around the world The mission of the International WAGR Syndrome Association is to promote awareness, stimulate research, and support families affected by WAGR syndrome.

• Private Operating Foundations

• 191.

DEATER FOUNDATION INC

Deater Foundation Inc. works to provide funding and support for medical research on HSAN1, a hereditary sensory neuropathy, with the goal of advancing understanding, awareness and helping to bring about a potential treatment/cure for this disease.

• Specifically Named Diseases

• 192.

PERTHES KIDS FOUNDATION

Perthes Kids Foundation was established to help raise global awareness for children and families surviving Legg-Calve-Perthes Disease, a degenerative hip bone disorder (osteonecrosis) that makes it painful to walk.

• Single Organization Support

• 193.

Danielas Little Wish Inc

I am 13 year old girl| I decorate and deliver FREE birthday cakes for kids with rare diseases since 2011| https://t.

• Fund Raising and/or Fund Distribution

• 194.

Hadleighs Halo Inc

We strive to offer heartfelt support and understanding to families experiencing infant loss by aiding in their immediate needs while bringing awareness to SIDS through the promotion of safe sleep.

Through Evelys Eyes

Our mission is to empower and assist families with children facing rare medical conditions, providing comfort, guidance, and practical assistance in their unique journeys.

• Specifically Named Diseases

• 196.

Marshall-Smith Syndrome Organization of the USA Inc

The mission of Marshall-Smith Syndrome Organization of the USA, Inc.

• Fund Raising and/or Fund Distribution

• 197.

Billie McKenna S Foundation Inc

Billie McKennas Foundation is a 501 c3 nonprofit organization founded in 2016.

• Specifically Named Diseases

• 198.

DON'T FORGET ME

•Dedicated to Finding a Cure or Medical Treatment for the rare disease BPAN.