• Fund Raising and/or Fund Distribution

• 154.

CHILDRENS INTERSTITIAL LUNG DISEASE FOUNDATION INC

A non-profit organization whose mission is to accelerate research to cure all forms of Children’s Interstitial and Diffuse Lung Disease.

• Birth Defects, Genetic Diseases Research

• 155.

Cure CMD

Cure CMD’s mission is to advance research toward treatments for congenital muscular dystrophies and empower those living with CMD.

HSAN1E Society

Patient advocacy organization fighting for awareness and research of HSAN1E #RareDisease #Hearingloss #Neuropathy #Dementia #neurological disease HSAN1E Society’s purpose is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research.

Scheuermanns Disease Fund

Scheuermann's Disease Fund - Raising Global Awareness for this Spinal Deformity The Scheuermann’s Disease Fund was created to improve the public's awareness and recognition of this spinal deformity, work towards improving early detection in adolescents, and to work with the medical community to better understand the long-term secondary effects Scheuermann's can cause.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 158.

Lydian Accelerator

Our mission is to accelerate genetic treatments for children suffering from genetic diseases.

• Human Service Organizations

• 159.

Yoey S Hope Inc

PUBLIC EDUCATION AND AWARENESS ON WOLF-HIRSCHHORN SYNDROME AND CHARITABLE SUPPORT FOR FAMILIES OF CHILDREN WITH WOLF-HIRSCHHORN SYNDROME.

WIEDEMANN-STEINER SYNDROME FOUNDATION

The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by #WSS.

• Specifically Named Diseases

• 161.

SETBP1 Society

President of SETBP1 Society and Parent Advocate for SETBP1-HD SETPB1 Society's mission is to provide support to individuals with SETBP1 haploinsufficiency disorde Our Mission is to provide support to individuals with SETBP1 disorder and their families, to promote discussion and fund research, and to bring awareness and education to the public.

• Fund Raising and/or Fund Distribution

• 162.

Believe in A Cure, Inc.

Believe in a Cure, Inc. is a 501(c)(3) tax-exempt organization whose mission is to: (1) support the care and treatment of individuals diagnosed with FOXG1 Syndrome and similar disorders, as well as to raise public awareness regarding such issues; and (2) support research and development of learnings and methods to improve the qualify of life for patients with such disorders.