• Alliance/Advocacy Organizations

• 145.

Bobby Jones Chiari & Syringomyelia Foundation

The Bobby Jones Chiari & Syringomyelia Foundation is built on leadership, vision & commitment to find a cure for #Chiari, #syringomyelia & related disorders.

National Foundation for Ectodermal Dysplasias

Use our advocacy tool to take action now and reach out to your members of Congress for support.

Decoding Developmental Epilepsies

We serve two distinct communities. First, we serve those living with SCN8A and their families.

• Birth Defects, Genetic Diseases

• 148.

Green Ivy Health Inc

WE HELP PATIENTSFIGHT vEDS FIGHT vEDS is a nonprofit organization dedicated to fighting and finding a treatment for vascular EhlersDanlos Syndrome.

• Alliance/Advocacy Organizations

• 149.

Rare-X

PATIENTS' DATA POWERING PROGRESS - RARE-X is expected to become the largest data-sharing initiative focused on rare diseases.

• Human Services - Multipurpose & Other N.E.C.

• 150.

Team Kelsey Foundation

Partnering with those who have been touched by childhood cancer because.

• Science & Technology Research Institutes, Services N.E.C.

• 151.

HUDSON-ALPHA INSTITUTE FOR

A nonprofit institute where scientists, educators, clinicians and entrepreneurs collaborate and apply genomics to improve the human condition around the globe.

• Fund Raising and/or Fund Distribution

• 152.

THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY

Fighting for children and families affected by 4H Leukodystrophy.

• Scholarships, Student Financial Aid, Awards

• 153.

MATTHEW RENK FOUNDATION

jrenkmatthewrenkfoundation. org The Matthew Renk Foundation is an approved IRS Code section 501c3 tax entity.