JEFFREY MODELL FOUNDATION

The Jeffrey Modell Foundation is a global nonprofit organization dedicated to Advocacy Research Education Awareness Newborn Screening and Genetic Sequencing for Primary Immunodeficiency.

Pheo Para Patient Initiative Incorporated

Our Team Speakers Bureau Pheochromocytoma Paraganglioma Peer Support Newly Diagnosed Care Kits Clinical Care Guidelines Center of Excellence Program PatientFocused Research International Symposium on Pheo Peer Support 1 on 1 and monthly peer support meetings Center of Excellence Program Find an Experienced Medical Team learn more Pheo Para Educational Video Library help others Pheo Para Alliance NEWS EVENTS keeping you up to date 2025 Rare Disease Day Posted on 25th February 2025 Nominate a Phriend for a 2025 Volunteer Award.

ALS WORLDWIDE

ALS Worldwide is the only nonprofit global health organization that provides free guidance and support to people living with ALS via videoconference, email, social media, phone, and in-person visits in the USA and more than 150 other countries.

PHEO ALLIANCE

Advocacy, awareness and support for those affected by #pheochromocytoma/ #paraganglioma The mission of the Pheo Para Alliance is to invest in research to accelerate treatments and cures while empowering patients, their families, and medical professionals through advocacy, education and a global community of support.

• Epilepsy Research

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Bridge the Gap

SYNGAP1 Foundation is a legacy page dedicated to preserving the work and mission of our 100% charitable nonprofit in the USA, focused on #SYNGAP1 To serve, educate and fund research for families coping with the effects of SYNGAP mutations.

• Nonmonetary Support N.E.C.*

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Extracorporeal Life Support Organization

Extracorporeal Life Support Organization ELSO OFFICE 3001 Miller Road, Ann Arbor, MI, USA 48103 Phone: +1-734-293-2101 ELSO Membership ECMO clinicians, research scientists, and members of regulatory and public health institutions are now eligible for membership in ELSO.

Little Hercules Foundation

We serve the rare disease community through access advocacy and good policy.

• Fund Raising and/or Fund Distribution

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Emily's Entourage

Accelerating lifesaving research and drug development for the final 10% of people with #cysticfibrosis that don't benefit from mutation-targeted therapies.

• Philanthropy/Charity/ Voluntarism Promotion (General)

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HOPEFUL HALOS FOUNDATION

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