National MPS Society, Inc.

The National MPS Society exists to find cures for MPS and ML.

• Medical Specialty Research

• 191.

The J David Gladstone Institutes

Gladstone's mission is to drive a new era of discovery in disease-oriented science and to mentor tomorrow’s leaders in an inspiring and diverse environment.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 192.

LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC

Patient-driven solutions for complex lymphatic anomalies: GLA, GSD, KLA, CCLA • Support-Research-Education • Somatic mutations PIK3/mTor & RAS/MAPK pathways Patient advocacy group dedicated to patient driven solutions for complex lymphatic anomalies We connect patients and families to peers and networks of care, partner to advance new research, and educate the medical community to help all people navigating complex lymphatic anomalies have hope for a healthier tomorrow.

• Digestive Diseases, Disorders

• 193.

Metro Maryland Ostomy Assn Inc

Home New Link About Us Outpatient Clinics Hospitals About Join Us What is an Ostomy Contact More supporting ostomy patients since 1974 Learn about our UOAA affiliated ostomy support group Meetings in 2025April 13 2025 Discussion with our loyal WOCNsMay No MeetingJune 8 2025 Robert Green introducing his invention for Urostomates rescheduledJuly 13 2025August No MeetingSeptember 14 2025October 12 2025November 9 2025 Coloplast Representative Paul WilliamsDecember 14 2025 Next Meetingwill beApril 13 2025at 12 NoonIN Personat Silver SpringHoly Cross HospitalEducation WingDiscussion with aid of dedicated WOCNsClickJoin Us and Meetingsfor more information and the Location.

Connective Tissue Coalition, Inc

Empowering Progress; Inspiring Hope Our Mission: The Connective Tissue Coalition (CTC) drives research, raises awareness, and provides resources for individuals affected by Ehlers-Danlos, Marfan, and Loeys-Dietz Syndromes.

OPMD Association

Advocates for Oculopharyngeal Muscular Dystrophy.

Jeff Gordon Children's Foundation

Racing to beat childhood cancer with our founder @jeffgordonweb.

• Birth Defects, Genetic Diseases

• 197.

GAUCHER COMMUNITY ALLIANCE

Join Us at Our South Florida Patient Family Meeting For Patients By Patients Our Mission Our mission is to help those affected with all types of Gaucher disease live their fullest life possible.

• Fund Raising and/or Fund Distribution

• 198.

Family Strong Foundation Inc

FAMILY STRONG FOUNDATON 550000Raised for Researchsince 2014 Raising awareness while supporting the reasearch for a CURE for ALS.