• Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C.

• 1.

INTERNATIONAL CHILDRENS ANOPHTHALMIA NETWORK INC

ICAN a voluntary not for profit organization, is a group of families and professionals dedicated to lending support to individuals who want to learn more about microphthalmia and anopthalmia and associated genetic counseling.

• Fund Raising and/or Fund Distribution

• 2.

Ellie White Foundation for Rare Genetic Disorders Inc

We will not give up until a cure for Wolfram syndrome is found for Ellie and the children suffering from this disorder.

• Birth Defects, Genetic Diseases

• 3.

Fragile X Resource Center of Missouri

The mission of the Fragile X Resource Center of Missouri is to benefit the lives of individuals with Fragile X Disorders and their families through support, education, public awareness, and advocacy.

• Birth Defects, Genetic Diseases

• 4.

17q12 Foundation

Creating a community for those affected by 17q12 syndromes while raising awareness and encouraging research.

• Birth Defects, Genetic Diseases Research

• 5.

International FOXP1 Foundation

Our mission is to build a global community that empowers and supports families and individuals with FOXP1 syndrome by sharing knowledge, inspiring hope, supporting research, and raising awareness.

• Birth Defects, Genetic Diseases

• 6.

Louies Huwe

Looking for information on HUWE1 gene variants.

• Specifically Named Diseases

• 7.

YBRP Inc

YBRP is a non-profit organization whose mission is to positively impact the lives of individuals with HNRNPH2 genetic variations.

• Fund Raising and/or Fund Distribution

• 8.

The Children's Rare Disorders Fund

Dedicated to curing rare genetic disorders Founded in July 2022 by parents of a toddler affected by FOXG1, The CRD Fund focuses on under served communities in the rare disorder space.

AXYS

Association for X and Y Chromosome Variations.