• Museums & Museum Activities

• 19.

Prader Willi Association of New England Inc

PWS is a non-inherited genetic disorder which is associated with a random deletion of the 15th chromosome.

• Fund Raising and/or Fund Distribution

• 20.

Familial Dysautonomia (FD) Foundation, Inc.

FD Foundation is the leader in FD treatment and research.

• Brain Disorders

• 21.

JOUBERT SYNDROME & RELATED DISORDERS FOUNDATION

The Joubert Syndrome & Related Disorders Foundation supports those affected by Joubert syndrome and related disorders.

DDC CLINIC FOR SPECIAL NEEDS CHILDREN

DDC Clinic is a non-profit primary care, education, and research facility.

Prader-Willi Syndrome Association | USA

What’s YOUR story. Tweet us and tell us what it’s like #GrowingUpRare We hope you will suggest the PWSA | USA facebook page to your friends.

Living With Xxy Inc

Storytelling the lives of men and boys living with Klinefelter Syndrome/XXY, while saving baby boys from termination.

• Patient Services�Entertainment, Recreation

• 25.

Idefine Inc

IDefine is committed to identifying life-changing treatments & cures and building community for those with Kleefstra Syndrome and intellectual disabilities.

• Fund Raising and/or Fund Distribution

• 26.

DHPS FOUNDATION

Leading the way in DHPS Deficiency Disorder research and education in order to find treatment, and a cure #curedhps #raredisease Our genetics make us unique our struggles and triumphs unite us.

BEYOND THE DIAGNOSIS

Beyond the Diagnosis unites art and science to bridge the knowledge gap in healthcare, promote inclusivity, and raise awareness for children living with life-altering diseases.