• Fund Raising and/or Fund Distribution

• 1.

Melissa Froio Foundation Inc

THE ORGANIZATIONS PRIMARY EXEMPT PURPOSE IS TO RAISE FUNDS FOR RESEARCH FOR BATTEN'S DISEASE THROUGH THE BATTEN'S DISEASE FOUNDATION AND TO PROVIDE ASSISTANCE TO THE ST.

• Fund Raising and/or Fund Distribution

• 2.

Taylors Tale

Taylor's Tale is a public charity dedicated to the fight against CLN1 disease and other rare diseases.

BEYOND BATTEN DISEASE FOUNDATION

Mission: eradicate Batten disease. Batten disease is a fatal neurodegenerative disorder that takes away childhood, and then takes away.

• Brain Disorders

• 4.

NOAHS HOPE HOPE 4 BRIDGET FOUNDATION

The mission of the Noah's Hope – Hope4Bridget Foundation is to raise funds in support of scientific research, and inform the community about Batten Disease.

• Specifically Named Diseases Research

• 5.

Nathans Battle Foundation

Nathan39s Battle Nathan39s Battle Golf Outing 2024 Nathans Battle 24th Annual Golf Outing August 15 2024 Memorial Donations Memorial Donations Please Mail Donatoins to Nathans Battle Foundation 459 S.

• Alliance/Advocacy Organizations

• 6.

Rare Sisters Batten Foundation Inc

A rare, fatal, neurological disease that affects sisters Cecilia and Lilly.

• Alliance/Advocacy Organizations

• 7.

Charlotte and Gwenyth Gray Foundation

Sisters, Charlotte & Gwenyth, were diagnosed w/ Batten Disease, a rare & fatal brain disease.

Lightning and Love Foundation

Founder of Lightning and Love foundation and mom to two ultra-rare THAP12 genetic epilepsy disease daughters searching for a cure.

BEYOND THE DIAGNOSIS

Beyond the Diagnosis unites art and science to bridge the knowledge gap in healthcare, promote inclusivity, and raise awareness for children living with life-altering diseases.